Help Fae get a powerchair!

  • US$1,632.00
    raised of $3,500.00 goal goal
46% Funded
28 Donors

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Hi my name is Fae and I am a disabled artist in the United States. Some of my diagnosed disabilities are pots syndrome, gastroparesis, hyper mobility spectrum disorder, chronic fatigue syndrome, and many, many more. I suspect I have hypermobile Ehlers Danlos syndrome as I have a lot of the signs. Heds is a degenerative connective tissue disorder that affects several parts of the body. I hope to see a geneticist soon to confirm whether I have it or not.

My health and mobility is declining quickly at my young age of 21. It’s getting more difficult to leave the house and go to events. I’m having to stay home due to my inability to stand or walk for long periods. I’m often stuck on the couch unable to complete basic tasks like using the restroom or getting food. I am now at fall risk because of my poor balance and leg instability. I use a rollator currently but my condition is getting to a point where it’s not helping as much. I have made the decision that I need an electric wheelchair. I cannot use manual wheelchairs due to my pots syndrome, chronic fatigue, and severe pain. Pushing myself in a manual wheelchair can cause joint damage and subluxations.

The electric wheelchair I have chosen is foldable and lightweight. The chair is much easier to transport than most powerchairs. It has a reclining mode which will be good for relieving pain/pressure of my back and shoulders. I’ll need the headrest piece to support my head while reclining ($138) . The leg extension kit is $298. It’s not 100% needed but would be helpful to elevate my legs since I have blood pooling. Because of my dysautonomia, my body cannot circulate blood properly. Therefore, my blood pools in my feet and legs which is painful and puts stress on my heart. If I raise enough funds I’ll be able to get both the head rest and leg extensions

I’ve had chronic illness since I was a baby but my health started declining rapidly in 2019. Since then I’ve started treatment and have seen many specialists. Recently my cardiologist has said that there is nothing more we can do for my health. I’ve tried everything and there’s nothing that can stop the progression. My illnesses are incurable and will likely be life long. My quality of life isn’t like I hoped. I’m sick every single day and it’s affected my whole life. This body is faulty and doesn’t work properly. This is my reality of chronic illness, living in an insufferable body.

Getting this electric wheelchair would allow me to go out and get around much much easier. It would improve both my physical and mental health. I’d have the freedom of movement that my body ca provide. These wheels will be my legs. If you have any questions please don’t hesitate to ask. Please share if you can I would appreciate it incredibly. I will put a link below where you can find my Etsy shop, medical wishlist, and more. Thank you so much -Fae

https://beacons.ai/earthfae?fbclid=PAAaZUuA_01bWFiepGqxBGzJNxY3t9x1wOomQkhzgUgPvPLUrSvHLspLuztuo

Organizer

Donors

  • Haley Taylor
  • Donated on Jun 01, 2023
$172.00
  • Anonymous
  • Donated on May 27, 2023
$100.00
  • Guest
  • Donated on May 27, 2023
Amount Hidden
Jun 19

I got a chair :)

Update posted by Faerie Compean at 02:34 am
rrrr

hi there it is June 18th and I have gotten a chair! It unfortunately does not have the recline or leg elevation features but due to the rapid decline in my health, I needed a chair now. I have not been doing good but i am so incredibly grateful for

See update
0
Jun 10

I’ve chosen a different chair

Update posted by Faerie Compean at 05:53 pm
rrrr

hey! It is June 10th and I have decided to get a different chair due to the urgency of me needing one and the original being too expensive. This one still has the reclining but unfortunately not the leg elevation. That is okay though. I just really need a chair

See update
0
Jun 06

Health update

Update posted by Faerie Compean at 12:52 am

hey yall it is june 5th and I thought I would write a health update. First, thank you to all the donors and those that have been sharing this on social media. I appreciate it so much and am grateful for everyone! The kindness I have received is beautiful and. . . . .

See update
0

Donors & Comments

28 donors
  • Haley Taylor
  • Donated on Jun 01, 2023
$172.00
  • Anonymous
  • Donated on May 27, 2023
$100.00
  • Guest
  • Donated on May 27, 2023
Amount Hidden
  • Anna Lovelace
  • Donated on May 26, 2023
$100.00
  • Anonymous
  • Donated on May 24, 2023
$50.00
  • Guest
  • Donated on May 22, 2023
$5.00
  • Guest
  • Donated on May 22, 2023
  • hope you get your chair soon!

Amount Hidden
  • Erika Lygren
  • Donated on May 22, 2023
$200.00
  • Kristin Graziano
  • Donated on May 22, 2023
$100.00
  • Guest
  • Donated on May 19, 2023
$15.00
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Followers

1 followers
Francesca Olivo
US$1,632.00
raised of $3,500.00 goal
46% Funded
28 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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