I was diagnosed with primary progressive multiple sclerosis on my 28th birthday 2008. I spent the next three years working with a mixture of people with illnesses such as Huntington's disease in Guernsey. In 2011 I moved to Southampton to start a social work degree and volunteer with young people. Unfortunately I was only able to complete the first year as my health started to deteriorate. My GP and neurologist told me there was no treatment for me, so all we could do was just cope as well as possible while deteriorating. Slowly fatigue set in I started to struggle with brain fog & my eyesight deteriorated. I went from regularly exercising and walking to almost bed bound, I lost my confidence & slumped into depression as I lost control of my body. A year ago my mother saw a BBC documentary on a therapy called HSCT being given here at Sheffield Hallam hospital for MS sufferers with relapsing remitting MS.I have primary progressive MS, and although excited that at last there was a treatment, we accepted it would not be suitable for me. No more was thought about it until my father worked for a lady Who had just come back from Russia, she has primary progressive and had this procedure done. I do not fit the criteria to have this done on the NHS, although they now recognise that this is a suitable treatment. Huge numbers of people have benefitted from this treatment and got their lives back. My only option is to have this treatment abroad, and there are a number of private hospitals abroad which are centres of excellence. I have a date for June 2017 to go to India for treatment. This time last year I was walking with a frame, I am now in a wheelchair so I dont have time to wait any longer. My parents can manage to pay towards the costs, but not the full amount which is 30,000 dollars. India is cheaper than other facilities which was a factor for us, but it is also verified as being an excellent facility.