Help Dave find ways to live with Multiple Sclerosis

Update posted by Dave Hall On Apr 09, 2018

It has been a year since I started this campaign. What a long strange year it has been. I have battled with medical bills; they are now under control. I have investigated as many possible jobs or other positions that might yield some kind of income; this has not been productive.

I have searched my mind for other ideas, and have many things that I want to do. Medical science does not want to deal with me because, at the age of 56, they feel that any kind of treatment, specifically stem cell transplantation will not be a viable option, simply because "I'm too old". There would not be a benefit when compared to the risks.

When I try to get up and exercise, the pain stops me. But after a while I get out and walk around. To the store, and back. Then I get worn out, and wind up back here at this computer. Walking is about the best thing I can do, and I do as much as I can, now with spring on the way, I hope this gets better.

I'm really getting aggravated with not being able to go places. It's a lousy life when a driver license doesn't exist, and access to transportation is limited. I love the bus; I drove one for ten years before I was diagnosed with MS, and my eyesight got so bad I cannot pass an eye test.

What I really want to do now is get on Amtrak and travel this country. When I do the math, which I do quite often, I would be saving money. Life in an extended stay hotel has been my life, and I like this. To travel from place to place, get off the train and camp for a while and then get back on the train and go to another place would be great. A nomadic lifestyle would fit my situation. I see no doctor appointments in the future, end stage diseases make this unnecessary. I'm single because I let my careers take most of my time.

I would still like to stay in contact with friends I've made in the medical community, and all of my other friends from working in emergency medicine, and then transportation. Somehow, there has to be something that can be done for people with end stage MS, and I want to do what I can to see this happen.

In closing, I'd like to say thank you to anyone who reads this, and hope that you may consider helping if you can. I am sure that I will keep in touch with everyone, and I hope to talk to you soon.

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Dave Hall

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