Hello, I am Chex. A 29 year old Italian-Filipina currently working in the IT industry. On my free time I enjoy dancing and drawing. I do freelance art as a hobby. Sadly, I cannot do those things now because I started to lose consciousness, balance, eyesight and now deal with constant and daily migraines.
I was diagnosed with a pineal gland cyst and over the past few months and this condition has made me unable to do day to day activities and I am also having trouble at work because of this condition. I am currently seeking help to visit a neurosurgeon in Germany who may be able to help me with my case before the symptoms cause any permanent damage to my body.
In January 2017 I started feeling changes in my body. Everything started with mild headaches which became more severe over time. Eventually I started having headaches on a daily basis and my eyesight started to become fuzzy and confusing. I thought it was just fatigue because I had been so busy.
In February 2017, I was hospitalized because the headaches and head pressures became more severe. My eyesight also started to deteriorate and now everything is glaring, pixelated, fuzzy and confusing. At this point I also consulted a neuro-opthalmologist and was told that the problem is nmost likely a neurological one.
From March 2017 onwards, I've been visiting two neurologists who said that my cyst was just an "incidental finding" and was not the cause of my headaches and visual disturbances, however, based on my research and testimonials from people with similar conditions, pineal gland cysts may cause all the symptoms I am feeling. I am always told by neurologists that they "don't know" the cause of my symptoms.
Although pineal gland cysts are common, many neurologists and/or neurosurgeons do not know how to handle this case and in a majority of the cases, patients live their life suffering if they cannot find the proper treatment. I believe studies of this began in 2012 and surgery started becoming the recommendation from 2014 onwards. Sadly, this is only done by a handful of neurosurgeons around the world.
My first portion of my fundraising activity will go towards my costs for consultation in Germany, where I will meet with Dr. Henry Schroeder, who has dealt with similar cases before and can hopefully diagnose my condition. He is also specialized in endoscopic-assisted skull-based brain surgery and has done pineal gland cysts removals in the past. If he tells me I am qualified for the type of surgery that will be done then I will proceed with this in hopes to regain my life.