My name is Varghese Benjamin and I am raising funds for my 1 year old daughter Gabriela Benjamin Varghese
Gabriela was born August 25, 2016. When he was born we noticed redness on the left side of her face and thought nothing of it, but the doctor informed us that there was a chance of him having Sturge Weber Syndrome (SWS). This was the beginning of her lifelong journey
SWS are a rare congenital, neurological, and progressive skin disorder. It is associated with Port Wine stain on the face, seizures, and strokes. At 4 months old Gabriela was having seizures and we rushed her to the hospital andthrough CT scan it was confirmed she haveSturge weber syndrome and also Ophthalmologist confirmed she hashigh pressure on her left eyes and possible with glaucoma and can lead to blindness if not operated . Due to these medical needs, our family has had significant financial demands. Insurance coverage does not cover these surgeries, hospital stays, MRI, medicines and other treatments.
The medical expenses have been constant and extreme. Both of us, as his parents, hold full-time jobs in middle east before and My wife resigneddue toof my daughter health conditionand then after a month I lost my job as well and we don’t have option, so we need to go back in my country in India.We are unable to keep up with the expenses of this disease. We are hoping to raise funds to allow us to continue with the procedures that Gabriela needs to fight the glaucoma of her eye, as well as continued monitoring of her brain.
Gabriela’s procedures are listed below:
MRI Scan for the brain and other test
Medicine for her Seizures
2 glaucoma surgeries
12 pulse dye laser treatments for the Port Wine stain
Please help us to reach our fundraising goal. Gabriela has taught us so much over the past 1 year. We have learned many things are not in our control and we have to stay strong and be hopeful for the best. Gabriela is our amazing resilient daughter.
We are grateful for your help!