Help baby Chad born with a rare genetic syndrome

Update posted by Tracey Classens On Aug 03, 2018

It has been a long overdue, much needed, update from our side. So much has happened the last few months with our baby Chad who is now 6 months old. Thankfully the leg casts came off, a very difficult three weeks with them on, but he now has straighter feet and is a much happier (and lighter) baby! He has to wear regular shoes (preferably made of leather but currently his feet are just too small) to carry on straightening out the feet as he grows. We are very blessed to have Dr Stead and his amazing team assisting us along the way.

Next we prepared to head to Johannesburg to meet Dr Kelly, we again were so blessed with Garrith & Jodi Jamieson from Rescue care sponsoring us flights (Business class! was a first for us all and so very exciting!) to Johannesburg with car hire! We headed off and thankfully Chad was a happy sleeping baby. We arrived in freezing Sandton at Sunninghill hospital in the nick of time and met with Dr Kelly, craniosynostosis Plastic surgeon expert and Dr Retief (Neurosurgeon), we were welcomed openly and had realistic discussions about what needs to be done. It was decided he will need a head CT in September and the operation will take place most likely at the end of October. This will be to separate the coronal sutures of the skull and a forehead remodel to allow more room for his brain to grow as he grows. So this is a biggy and Chad will need to be in Johannesburg for at least a month during this time.

On returning we had follow up hearing tests with Dr Kara Hoffman and her team, as well as with Dr Parbhoo (Ophthalmologist). It was then decided he has lazy left eye and so needs patching 4 hours day on the good eye (we are working on this one slowly but surely!). It was also decided by his ENT Dr Williams, he will most likely be needing grommets due to fluid build up in his middle ears which is affecting his hearing.

We also have started physical therapy once a week in order to strengthen his upper body and work with various issues, and so far have been blessed with an amazing team once again to handle this. He also sees Dr Matkovich for Chiropractic support when needed.

Everyday is a challenge to not overthink the future for Chad and the struggles ahead, but we just take a day at a time as always. We have had interesting questions and i encourage people to ask as many as they can, yes he can see, yes he communicates, yes he will crawl, walk (even run) one day, yes he can even suck his thumb :)

He is happy as can be and loves to laugh, babble, grab his toys, attempt to roll and really melts your heart at how hard he works to grow into a strong healthy boy.

We are very blessed to have such amazing support from family, friends, professionals and strangers far and wide! So thank you for helping us get this far!

Yay leg casts are off! Kick kick kick, play play play :)

Ready to board the plane!

Ready for take off!


In Johannesburg, off to meet Dr Kelly and the surgical team

Comfy in the air B&B in Johannesburg, a bed to myself! 1 degree Celsius!! Brr

Back home enjoying solids, yum!

Eye patch for the lazy eye, after our long ophthalmology appointment.

Working hard in physical therapy!

Happy baby :)






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Update posted by Tracey Classens On May 15, 2018

We have been so overwhelmed with such amazing support for Chad! So very blessed to have his story shared far and wide, and receive so much love, support, prayers and donations allowing us to push on forward. So thank you to everyone, words cannot describe!!

Last week we had the dreaded leg casts put on, as Chad was born with very high arched turned in feet, he needs leg casts for 3 weeks in order to straighten them out and stretch the ligaments. He smiled through it all until he realised he couldn't kick his legs (his favourite past time!) and then many meltdowns later and a sleepless night for us all, he adjusted.

For my first mothers day I was gifted with the most beautiful laugh from this boy as my amazing husband said "Happy Mothers day!". So blessed and well more tears later, my heart melts for this precious boy.

We are off to Johannesburg end of the month as the leg casts are removed to see a Craniofacial Surgeon and we are praying the 6 hour drive (thank you to my Dad for lending us your car!) will be worth it! We have forwarded all the scans and appointments up to date to the specialist and hope he can help us - so far this includes, ENT, Ophthalmologist, Paediatrician (amazing Dr Roos - who will be helping us manage the specialist visits), Cardiologist, Craniofacial team in Durban, Geneticist, Audiologist, and Orthopaedic surgeon.

It is only the beginning of our journey but already we have been blessed in so many other ways, it definitely takes a small town rather than a village to raise this boy but he is such a strength which keeps us going and we really are so grateful for all the support!


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Thank you Marinda & Coopie for all our support!! Will have to come visit soon Xx Lots of love

Tracey Classens

Update posted by May 15

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Our beautiful Protector and Defender, baby Chad, you are so brave! Your fighting spirit is such an example for us. Thank you for being such an awesome example of what true courage, endurance, hope and love truly mean and looks like. You are not even a whole 4 months old, but you have taught me SO MUCH! You truly are a real little Angel. Ek lief jou SO BAAAAAAIE my seunskind. God Bless you now and always. Tracey and Brad, you guys are awesome parents! Baie liefde Milla, Mams en Coopie xxxxxxxxxx

Marinda Cilliers

Update posted by May 15

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Thank you Sam !! Xx

Tracey Classens

Update posted by May 15

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Little soldier is doing so well lots of loves from our side. ❤

Samantha Loos

Update posted by May 15

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Blessings and strength to you all.

Lorna Holloway

Backed with $75.00 On Aug 04, 2018

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May every cent donated be blessed as it helps little Chad on his difficult journey

David Smillie

Backed with $60.00 On Aug 04, 2018

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Hi guys stay strong! Thanks for the update! Here’s a little donation from us. Pray in Jesus name your little man stays stays strong and healthy!

Gary Scott

Backed with $20.00 On Aug 03, 2018

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Charlotte Lennox

Backed with $20.00 On Aug 03, 2018

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As promised another top-up for my grandson Chad Lotsa luv Oupa Darryl xxxx

Darryl Classens

Backed with $200.00 On Aug 03, 2018

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As promised a further donation to help my grandson Chad Lotsa Love Oupa Darryl xxxx

Darryl Classens

Backed with $100.00 On Jul 06, 2018

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As promised my way of helping my grandson Chad Lots of Love Oupa Darryl xxxx

Darryl Classens

Backed with $214.00 On Jul 06, 2018

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We love you and we're with you every step of the way.

Laraine & Garth Wight

Backed with $500.00 On Jun 19, 2018

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Thinking of you and sending big love and hugs to brave little Chad from Uncle Rob and Aunty Lin xx💝😘

Linda Retzlaff

Backed with $130.00 On Jun 19, 2018

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Anonymous

Backed with $15.00 On Jun 08, 2018

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Tracey Classens

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Brad Classens

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