Hi everyone, I'm Jocelyn and i am mobilizing a fundraising to provide MILK for her food to eat, NGT-(Nasogastric Intubation Tube) A nasogastric (NG) tube is a small tube that goes into the stomach through the nose. Breast milk, formula, or liquid food is given through the tube directly into the stomach, Diaper and other needs for Aliah. Aliah has a inborn disease called Cornelia de lange Syndrome and she is 17 years old now. Cornelia de Lange syndrome is a developmental disorder that affects many parts of the body. The features of this disorder vary widely among affected individuals and range from relatively mild to severe.
Cornelia de Lange syndrome is characterized by slow growth before and after birth leading to short stature; intellectual disability that is usually moderate to severe; and abnormalities of bones in the arms, arms and fingers.
We knock on your kind generous hearts to help aliah.