On Saturday 8 of April 2020, my husband jay had a life-altering seizure that progressed into refectory epilepsy and was later diagnosed with Type 1 diabetes.
Living with epilepsy has changed Jay’s life more than you can imagine. He needs 24-hour care as his seizures hit without warning and leave him incapacitated for many hours thereafter. Some of the seizures he has are not so visual, and he may look okay, but at times he is battling with confusion from the lasting effects of these seizures. On Jay’s worst weeks he can have up to 20 seizures per week.
Jay has failed all epilepsy drugs and his condition remains extremely difficult to treat. In November 2019 Jay had a surgical VNS implant fitted in the hope this would help to reduce his seizures, unfortunately, this has not worked for him.
A ministerial license for medical CBD was granted to Jay in September of this year, this treatment is proving somewhat promising and it is the best we have seen Jay in over 3 years, conversations are being had for the first time since he became ill. Even though Jay is still having the odd seizure, his recovery from them is quicker.
The CBD prescribed is expensive and is not funded by the government. We understood at the time of applying for the licence that we would be reimbursed, but this will not be the case until the trial period has ended, and even then, it’s not guaranteed that we will.
It costs 2000 per month for his prescription. We would be so grateful for any donation you can make to help Jay, and we would also like to acknowledge the support we have received to date from Jay’s friends and colleagues.
Any donations you make will be to help fund Jay’s Medical Cannabis treatment.
Thank you for your support.