Dear friends and family, For those who don't know me very well, I was diagnosed at birth with a rare genetic disorder called Goltz Syndrome. At the time of my diagnosis, there were only 100 reported cases in the world. Now there is an entire foundation dedicated to rare genetic disorders known as Ectodermal Displasia, which Goltz Syndrome falls under. I am one member of this ever-growing foundation, and have been invited to attend a conference devoted to Goltz Syndrome. A conference concerning my disorder, has never been held in my 28 years and I am very much looking forward to attending in July 2013. In order to do so, however I am in need of some funds. My goal is to reach $2000 in order to supplement what I have saved up for airfare and meals, and perhaps some to donate to the National Foundation of Ectodermal Displasia to help their research along. I am reaching out to family, friends, acquaintances for your help, and would greatly appreciate any donation you can make. A little goes a long way. I am hoping to gain a deeper understanding of my syndrome and how it might influence my quality of life in the future - at this point, I really only know about my particular characteristics and have little awareness of the potential effects of the syndrome overall on me and any children I might have one day. I would like to thank anyone who is able to support me in advance from the bottom of my heart!