Haemophilia South Africa – Duncan Mc Menamin
Fundraising campaign by
Wilien Rossouw
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ZAR40.00raised of R1,000.00 goal goal
The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate
Campaign Story
My son Duncan is diagnosed with Severe Haemophilia A. He is missing the clotting factor (Factor VIII) that causes blood to clot.
Haemophilia causes dangerous haemorrhages internally and into the joints and muscles, resulting in severe pain and eventually causing crippled limbs. It leads to interrupted education and eventual difficulties in obtaining and keeping employment. Frustration and depression so engendered can be the cause of social difficulties.
The condition demands medical and social attention out of all proportion to its frequency, placing considerable financial demands on both affected families and Provincial health services. Haemophilia is not curable. Effective treatment has become available only in the last two decades, mainly due to the improvement of technology to extract the relevant protein from donated blood and administering it to the affected individuals.
Currently our treatment cost us approximately R 23 200.00 per month (1210.98 Pound / 1607.23 USD). That is only for his normal treatment and not when he has a severe bleed and needs extra treatment or his hospital costs.
We are lucky to have a good medical aid that cover most of the cost but there is still families who does not have a medical aid and cannot afford treatment.
We would like to raise funds to donate to South Africa Haemophilia Foundation. (http://www.haemophilia.org.za/donate/ ) so enable them to help those families in need. And to create World Haemophilia Awareness.
Gene therapy provides a potential phenotypic cure for hemophilia, yet the cost of this novel treatment is high and will cost us Millions when it comes to South Africa.
Organizer
- Wilien Rossouw
- Campaign Owner
- Pretoria, ZA
I am A mother to a son of severe Haemophilia A
I am A mother to a son of severe Haemophilia A
Donors
- Sid Puckree
- Donated on May 17, 2019
- Ansie Crous
- Donated on Mar 18, 2019
- Anonymous
- Donated on Mar 18, 2019
No updates for this campaign just yet
Donors & Comments
- Sid Puckree
- Donated on May 17, 2019
- Ansie Crous
- Donated on Mar 18, 2019
- Anonymous
- Donated on Mar 18, 2019