Giving Hope for Hailey – Leukodystrophy with Vanishing

Fundraising campaign by Gerhard
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Hailey is a 6 year old girl who is suffering from Leukodystrophy with Vanishing White Matter Disease. This fund is to raise money for a handicap accessible vehicle, supplies and medical care.  Leukodystrophy is an absolute horrific disease with no cure at this stage.  Hailey cannot play, walk, talk, eat, move or communicate, for the past six months now.  When Hailey used to smile it warmed your heart.  Hailey was born seemingly normal.  She was a happy, joyful little girl with lots of energy and an extremely good vocabulary for her age.  She loved her walks in the orchards, riding her bike and loved all the farm animals and especially playing her computer games.  She also loved school and went to school until the first term of Grade R (Kindergarten - 2014).  After her sixth birthday things changed rapidly.  Her health went downhill fast; she stopped talking, couldn't sit up or walk anymore, she couldn't hold any food or drink down and was losing weight rapidly.  She needs to go for a Percutaneous Endoscopic Gastrostomy, a feeding tube inserted into the stomach, because she can no longer swallow on her own or keep food down.  She is at the mercy of one of the most merciless diseases, Leukodystopy.  It has no cure and it's agonizingly painful or her and mentally so for everyone who takes care of her and those who frequently witness the heart-breaking nature of her ailments. Hailey has fought well beyond her original life expectancy the last two months, coming back always and often from the bleakest of circumstances.  Please help support Hailey and her family during this most difficult of times.  Thank you so much for your consideration, time, love and honourable support.

Organizer

Nov 15

Hailey is currently in Hospital

Update posted by Gerhard at 08:50 am

15 November 2014  

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US$0.00
raised of $50,000.00 goal
0% Funded
0 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities