Give Henry a Voice

Update posted by Phyllis Walden On Aug 28, 2016

1998 - diagnosed with stage 4 Hodgkin's Disease
- Began chemo in September

1999 - January scans showed 50% reduction of cancer
- May scans (upon completion of chemo) showed cancer had returned to initial levels
- Began stem cell/bone marrow transplant in July
- Cancer was in remission after completion of transplant

2004 - Scans and biopsy showed cancer had mutated to include Non-Hodgkin's cells
- Began Rituxan treatments of one per week for four weeks every six months
- Cancer was controlled

2010 - Rituxan treatments in January failed to control the cancer
- Began new round of chemo with different drug regiment in March
- Received second stem cell/bone marrow transplant in September

2012 - Blood Platelets (the things that cause blood to clot) dropped to less than 1000
(normal is around 250,000)
- Began to lose vision
- Vision returned while being treated with Rituxam to correct the low blood Platelets

2013 - Experienced a sore throat that would not go away did not look into it due to a family illness

2014 - Started to investigate sore throat in July
- Diagnosed with Stage 4 Throat Cancer in August
- Received chemo and radiation treatments September - December
- Had feeding tube inserted to assist in nutrition

2015 - Feeding tube removed in February; began experiencing breathing difficulties shortly thereafter
- Made several trips to the emergency room during the next few months
- Follow up scans showed spots in my lungs and swelling in my throat
- Ear, Nose and Throat doctor ordered a swallow test; failed badly
- Feeding tube reinstalled
- Tests showed that trachea was not functioning properly; started Oxygen Chamber Treatments
- Tracheotomy preformed instead after two trips to the emergency room.

2016 - Trach tube removed but still unable to breath normally
- Given choice: keep trach and feeding tube for life or completely remove larynx and be able to swallow food
- Laryngectomy performed May 31
- Began eating food in August

Upcoming - Surgery to reinstall the esophageal puncture tube which is necessary for the installation of a more permanent speech device that will make it easier for me to speak and for others to hear and understand me
- Reopen stoma (the hole through which I breath) to the proper size

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Hang in there, Henry!!! XO

The Purnells

Backed with $100.00 On Oct 12, 2016

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Anonymous

Backed with $100.00 On Oct 01, 2016

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Praying for Henry.

Guest

Backed with $25.00 On Sep 29, 2016

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Praying for you daily Henry.

Denise Mccormick

Backed On Sep 28, 2016 Amount Hidden

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Mary Gelenser

Backed On Sep 28, 2016 Amount Hidden

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Anonymous

Backed On Sep 28, 2016 Amount Hidden

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Anonymous

Backed with $50.00 On Sep 28, 2016

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God is good always. I will keep you in my prayers Dear Henry. You were my favorite teacher of all time, and none could compare to you. I'm so sorry that you're going through all this. I know that you deserve better, but whatever you're going through I believe is God trying to teach you something. Keep looking up and ask God what he's trying to teach you. This donation is from me and my two children Elizabeth and John. Thank you for being such a special person in my life

Becky Bankes

Backed with $100.00 On Sep 09, 2016

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Don Nelson

Backed with $50.00 On Sep 09, 2016

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Joanne Little

Backed with $50.00 On Sep 08, 2016

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Phyllis Walden

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