My name is Celeste and I am nearly 3 years old but I don't talk, walk or eat on my own. This is because I was diagnosed with spastic cerebral palsy and it has unfortunately inhibited me from living a normal life and progressing correctly. Besides that, I also suffer from Epilepsy(generalized idiopathic epilepsy), which gives me a bad time almost every time I wake up and sometimes throughout the day, which they believe it was because of lack of oxygen when I was first born, therefore we have appointments almost every month with different specialist to help me.Thankfully mommy and I were put into contact with Doctor Nils Thoennissen from CBC Health Germany which explained to us a procedure that can help me live the life I'm supposed to, but I'll leave that for her to explain.
Hello everyone, my name is Priscilla, Celeste's mom. Doctor Nils Thoennissen explained to us the Stem Cell Therapy, which has the ability to regenerate a lot of the damaged connections in my daughter's brain, this will help not only with my daughter's Cerebral Palsy but also with her Epilepsy.
At this point in her life, Celeste can only stand on her two feet for short periods of time and by holding onto something, and as hopeful as I am to see her walking soon, it has been a very difficult process for her given the Cerebral Palsy inhibits her hip strength which makes the possibility of walking a very difficult one to attain, hence the apparatus that can be observed in the photo she has to use it 3 hours a day, which even though it is helping her and given by an experienced physiotherapist, it has provided her with very little progress. The same can be said for her epilepsy medication, for which the dosage and the medication itself is consistently being changed due to the very low efficacy it has had.
Throughout her short lifetime she has been to several specialists such as audiologists, cardiologists,endocrinologists, orthopedists and several others I can't remember the names to, since most of them have only seen her once so far. She has also had MRIs, CT scans and of course EEGs done. She goes to a special school for estimulation, as well, but unfortunately for speech and physical therapy is very little help they provide.Thankfully she has progressed quite a bit even though she still has a long way to go. She just started crawling since last year (December 2019), where she was already 2.6 years old, and regarding her eating, she doesn't actually chew her food, she mostly swallows it, which is why she doesn't get all the nutrients she should and why she is so small in size and weight for her actual age. We have been through so much more than what I have written so far, but my family and I had a strike of hope when we heard of Stem Cell Therapy and the results it is having, and after having a video call with Doctor Nils Thoennissen, we knew it was the right way to go, which is the reason we are asking for $22.300, that will help us cover the procedure as well as the travel expenses, allocation and therapy that are a bit high as we are in Costa Rica and the procedure is done in Germany.
My daughter, my family and I are immensely grateful for any donations that can be made to help us and we will most definitely share our experience during and after the procedure is done.
If you'll like more information, feel free to email me at [email protected]
You can also donate via this paypal link>
Thank you if you've read until here!