Gastroschisis and Omphalocele Awareness
Fundraising campaign by
Troy Sumner
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US$0.00raised of $10,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
My wife suffers daily from a birth defect called Gastroschisis and Omphalocele. She has had over 17 surgeries in her 36 years of life, and now she goes in the hospital every other month for about 1-2 weeks at a time. Which has caused her to be unable to work any longer! Her intestines have stopped absorbing nutrition and she is on TPN (total parenteral nutrition) for the past 3 1/2 years. Meaning she has to get her nutrition through an IV bag into a port in her chest. She gets reoccurring infections due to the port and has recently been getting kidney problems, bladder infections and has been hospitalized for sepsis to many times to count.
I want to be able to fulfill one of her dreams and take her on a cruise and just go on a few trips to let her experience traveling and seeing new places, I want to make her so happy. But hard to do with my Military pay check. So I thought I would give this fundraiser a try. I really want to get the word out to more people about this condition as it is really rare and almost impossible to find other adults with this condition. All of her doctors basically just try to manage her condition the best they can to make her comfortable.
If you would like to help. You can in two ways. One is to get the word out to more people and to educate yourself and others on this condition, please look it up and read more about it. And please, please, post this to all your social sites and email it to everyone you know. Together we may be able to get the word to the right people that could help her get better. I believe in a way to fix her. Even though she has lost hope in it! Second- if you would like to donate to my fundraiser I would be greatful, no donation is to small!
Keep the dream alive! I met my wife in high school.. and have been married for 17 years. I could not ever imagine this world without her. Please get the word out.. Please
Organizer
- Troy Sumner
- Huntsville, US
No updates for this campaign just yet
Hi there, My name is Linda and I live in Loveland Colorado. I was born in 1967 in Minneapolis Minnesota weighing in at 3.5 lbs. With an omphalocele. I have had a lot of complications........ Surgeries, sepsis, ARDS, pain, doctors, hospitals etc. Im also disabled from having stage 3 lung cancer in 2010. For that reason I’m not able to contribute financially. But I would be honored to support your wife in any other way that I possibility can. My email address: [email protected] I’d love to hear from her. I don’t know anyone that has had an omphalocele. Your both in my thoughts and prayers.