Twenty-month-old S. Nevelash was diagnosed with a rare disease known as hemophagocytic lymphohistiocytosis (HLH) by specialists at University Malaya Medical Centre (UMMC) just six weeks after his birth.
His father A. Saravanan, 30, said a hospital in India had identified a compatible bone marrow for his son but lack of funds was hampering the operation.
“I am just a technician with a RM1,800 salary,” he said at a press conference.
The doctor said the abnormality of the immune system would result in inappropriate activation and overactivity of immune cells, leading to a life-threatening complication called HLH.
Following the successful completion of a 10-month treatment schedule, an operation was performed but a few days after the surgery Nevelash experienced a recurrence of HLH.
He is now on long-term treatment and medication.
Dr said Nevelash would need a bone marrow transplant to replace the abnormal immune cells, using cells from an unrelated suitable donor.
It is estimated that the cost of performing the surgery at private medical centres here would be RM350,000 but a similar one in a hospital in Chennai would be about RM200,000 (approximately 62000USD).
My friends and I have now united to raise funds for Nevelash. Please help us to help him. We cannot do this alone. Thank you all so much!!