We live in Bloemfontein, South Africa
Please feel free to visit Blayne's Journey on Facebook https://www.facebook.com/BlayneBlignaut/
I want to do a fundraising for my baby,Blayne's, medical expenses. He was born at 28 weeks,747 grams and had a rough journey. He is currently on 24 hours oxygen due to chronic lung disease for being intubated(machine to help him breath) for too long. He has a lot of medical expenses. He is admitted about once a month in hospital for breathing issues or infection. He needs to see a Neuro Physio once a week to assist with development as his development is far behind. We need to go up to Johannesburg frequently to see a Pediatric Pulmonologist. Every admission the medical aid shorts paid his doctor, blood test and some scans and it all is adding up to a use burden. Traveling to Johannesburg is costing a lot of money as we need to pay diesel,accommodation and food.
The hospital in Johannesburg has got a 35% co-payment as it is not a hospital for my medical aid. I had to resign my job to look after our baby and it is only my husband that had an income now.
To pay his doctor all the short falls, to pay the short falls on all the scans and tests, to pay the hospital in Johannesburg the short fall on the hospital account and all the doctors and therapist short fall accounts. To use money for accommodation and diesel to travel to Johannesburg.
This will take of a huge burden and it will assist to make sure Blayne can see his Neuro physio week,see his Pediatrician, to see all the doctors and therapist in Johannesburg, He is seeing Pediatric Pulmonologist,Neurologist, Cardiologist, Speech therapist, Physio.
Thank you so much for opening your hearts to help with Blayne's Journey. This will help him so much and will help to take most of the stress away from mommy and daddy, May God Truly bless you!
Blayne was born at 14:30 on 21 September 2018 at 28 weeks due to iugr and pre-eclampsia. Blayne weighed 747g, 32cm. Blayne had Grade 1 brain bleeding which stopped the same day(confirmed on brain scan). Heart sonar confirmed PDA has not closed and medication was given. At about 3 days old we almost lost Blayne due to allergic reaction to the medication. Blayne pulled through and pda closed. After another scan it showed pda has opened again, other medication was given, and pda became smaller.Blayne had heart failure and was on adrenaline for almost 3 weeks to keep heart beating. He survived a resuscitation. Drs did not have much hope for Blayne to survive. There where lots of times dr said there is nothing more he can do for Blayne,all that’s left is prayer and faith. Against all odds Blayne fought every day.At about a week old he had kidney failure and suffered severe oedema where is body swelled 10 times his sized. Kidneys stopped for 3 days. Kidneys started to work and swelling went down. From all the swelling at the back of his ear had a severe tear and it was treated. Blayne had partial lung collapse. One day it will be 2 lobes on left and 1 on right. Next day 1 left and 2 on right side. Took a while for lungs to stay completely open. For 4 weeks Blayme was on oscillator(machine that shakes the lungs open and blows in pressured oxygen. At 4 weeks old Blayne moved toe ventilator(machine that helps you breath)caught Klebsiella Pneumonia(dangerous lung bacteria) and we almost lost him one night due to Hypoxia(not enough oxygen in body)even thou he was on 100% oxygen. He pulled through. After recovery Blayne was moved from oscillator to ventilator. After 3 weeks on ventilator Blayne received steroids to assist to get of ventilator amd was moved to cpap for about 6 weeks. from cpap to normal NC oxygen.Antother dose of steroids was given to try get him off oxygen, but only made the requirement lower. At 5 months old dr admitted him again to give another dose of steroids to try to get him off oxygen but failed. Blayne gets admitted every month to the icu due to his lungs being so weak,he will suffer distress in breathing. Blayne has Bronchopulmonary dysplasia caused by long time on high oxygen and being on oscillator and ventilator. He is on full time oxygen at home and very dependent. After 11 months of pediatrician doing all he can in his field for Blayne, Blayne got referred to a Doctor in Johannesburg, pediatric pulmonologist, the only one that was willing to help with his case. Blayne is going through lots of test to find the problem of still being so oxygen dependent. Blayne had a heart sonar done and was discovered he has severe Pulmonary Hypertension(A type of high blood pressure that affects arteries in the lungs and in the heart) . Neurologist saw Blayne and is evaluating if there was damage to the brain, or of he has a muscle disorder that could cause him the be dependent. He is also being seen by a Speech Therapist to assist to stimulate neck muscles with Vitalstim Therapy for swallowing as he is aspirating a bit, a getting some milk in lungs which is damaging the lungs and causing inflammation. He is also getting daily Neurophysio,to clear lungs and to assist with development as Blayne is still very floppy and can not sit yet.