US$1,976.00Donated So Far
- Hello,my name is momen, this fundraiser is to help me to pay for my treatment in queen Rania al abdullah hospital for children at king Hussein hospital . treatment of the child Momen who suffers from Spinal Muscular Atrophy, He wants to buy a medicine called evrysdi (Risdiplam) from Roche Company, the price of one box is 10 thousand dollars, he needs it on a daily basis,and he needs many box،and he need to take the medicine called Zolgensma from Novartis urgently.
- Moamen is suffering from Spine Muscular Atrophy (SMA). SMA is a group of genetic diseases that progressively destroy motor neurons — the nerve cells in the brain stem and spinal cord that control basic skeletal muscle activity such as speaking, walking, breathing and swallowing, resulting in muscle weakness and atrophy if left untreated. SMA has a treatment called evrysdi (Risdiplam) which is not available in Jordan. Treatment costs about $10,000 per dose. His family struggled to get their first dose. Momen needs daily doses as soon as possible. If treatment is not continued, unfortunately, he does not live much longer due to respiratory failure. She is not covered by insurance and unfortunately his family cannot afford it on their own. That's why they ask for help. Please help them fight it and pray for this beautiful boy.
- **Note: momen had 3 brothers who died of the same disease.
- Momen Hasanat
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