I was diagnosed with a petrous apex cholesteatoma in June this year after spending a week in hospital. I had a battery of tests as well as numerous CT and MRI scans.
My symptoms include extreme headaches, nausea, pins and needles and numbness to the left side of my face, weeping left eye and sometimes blurred vision.
It is difficult to perform the normal daily functions when I get the symptoms.
The petrous apex is located in the center of the head approximately 2-3 inches from the outside of your ear. It is one of the most inaccessible areas to reach in the skull. The petrous apex can have lesions and tumors within it. The most common type of lesion is a petrous apex fluid filled cyst.
The surgery is very extensive and rarely performed in South Africa as this is an extremely rare condition. The area that it is located in, requires you to go in between the carotid artery, jugular vein and cochlear.
Between 1983 and 2004, 43 patients were treated in USA.
There is a Prof. Marco Caversaccio in Switzerland who specializes in this type of surgery, and I would like him to do the procedure for me as there are huge risks involved with this type of surgery.
I am trying to raise funds in order for me to have this very delicate and complex surgery performed in Switzerland by Prof. Marco Caversaccio.
Thank you for reading my plea.