Damien McCauley is a sweet little 5 year old boy who has battled every day of his life to live. He was born with a condition called Nephronophthisis (type 3) which causes liver and kidney failure, severe developmental delays, heart, eye and bone defects, lack of muscle tone and more. He does not walk and he does not eat by mouth; instead he is fed thru a feeding tube. He has suffered thru many surgeries and long hospitalizations including a liver and kidney transplant in May 2018. During his 4 month recovery from his transplant, he suffered a stroke, respiratory failure, seizures, 2 bouts of pneumonia, MRSA and a hole in his stomach. His new liver is doing well but due to the many setbacks he suffered, his kidney did not take and he was placed back on the organ transplant waiting list... a list he has been on since he was just 4 months old.
Due to the high medical and transportation expenses the family has, it is almost impossible for them to make ends meet despite the fact they have cut every possible corner they can. On Jan 6th, their only car broke down leaving them stranded on the side of the highway in freezing temperatures with Damien. They now have no transportation for the 300 plus miles they need to travel every week to get Damien from Maryland to Washington DC for treatment and no money to fix their car. They are using their rent money to pay for public transportation to get Damien to dialysis which he cannot survive without. They are having difficulty paying for the high copays for his medication and other related expenses which are unavoidable. All repairs that have been done on their car have failed thus far.
Our goal is to raise enough money to help them with their never ending medical and travel expenses and to get them a reliable vehicle so they do not have the additional burden of car repairs to deal with.