Hiya I'm Mel gracies mum I'm setting up this page to get gracie the medical care she needs. Gracie was born February 2018 we already knew about her heart condition tetrology of the fallot and her missing chromosome 22 (digeorge syndrome) before birth . Gracie had her 1st cardiac catheterisation at 8 days old for investigation to see how severe her heart condition was and we found out that she was more severe than we originally thought but we was given a little bit of hope and was allowed to bring our daughter home so we can get these arteries to grow so it would make full repair surgery possible.fast forward a few months went back to cardiac cath lab again making it 3 times since birth gracie had a balloon to help widen the arteries and a metal stent to encourage more blood flow. We had a tiny bit of growth on her arteries but still not enough to do full heart surgery. Now we have received the most devasting news from the doctors that no parent wants to hear we don't want to do anymore work on gracie and it's in God's hands. What I'm asking for is just some help to get gracie a private ct scan in London so we got a clear picture of what is actually going on with out little girl even if you can only spare.