My name is Agnes Eszes. Sorry for my translation, but I can't speak english, just a little bit.
Child: Richard Wolf was born in the summer of 2002. One and a half years of age had liver abscess surgery, and her three-month and six weeks mechanically ventilated lung abscess. In 2006, a bone marrow transplant took place, where I was the donor. Transplant complication of chronic GVHD was (the foreign bone marrow attack the body), tüdőfibriózis taking place, which required a continuous supply of oxygen for 3 years.
November 2009 in Vienna lung transplant from living donors Ikan second took place, I was back to the donor. Since then we continued three hospital check-ups: Budapest, Miskolc and Vienna.
In February 2012, Vienna Port-a-Cath implantation and colon biopsy, which was the result of Stoma. From then on, due to continued hospitalization of the Onko-Miskolc Child Health Center, Department of Haematology and Csontvelőtranszplantációs intravenous feeding. We spend two weeks in the hospital for two weeks at home. Because of the many surgical procedures they are nutritional malabsorption, not a woman and not gain weight. Already I have learned everything from Porta needle exchange, preparation of infusions of artificial feeding. Unfortunately, optic nerve atrophy, cataracts, and has also performed in many of the side effects of treatment, even in the teeth is destroyed Ricsikémnek.
He is 13 years old, and 12kg. :(
We understand that the world is still struggling with a disease such children are welcome. Foundation grants do not really get, because illness is not cancer related. We do our best Ricsikéért all the support and grateful heart, and most welcome.
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