Mises à jour activées Help fund my rare disorder Neurofibromatosis Medical Expenses

Mise à jour publié par Katrina Mina Le Jun 11, 2019

Hi! I know it's been a while. I had to jumble my time for work and also going back and forth the hospital.

After the MRI, they found out that there is an issue with my left ear so I was asked to do a hearing test to determine if I do have to wear a hearing aid. But the doctor wanted me to try if it can be cured by taking in some meds then after a week repeat the hearing test. I had to do it for 3 consecutive weeks. Unfortunately, the only way to fix the damage on my middle ear is to undergo an operation, which would cost me 80k-100k. This operation would help equalize the pressure on both ears.

There are a lot of restrictions-- wearing headphones, flying on a plane, loud noises (for it can trigger ear pain and headaches) and no swimming.

Again, I wanted to thank everyone of you for sharing your blessings in order for me to do these tests and also have the means in buying the meds I need. May God bless you and your family.

love love love.. <3

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Mise à jour publié par Katrina Mina Le May 03, 2019

Thank you for your continuous support! I was able to have my MRI- Internal Auditory Canal with Contrast last night.

I was nervous, scared and all other kind of emotions! (Hormomes maybe) but after I got a hug from my mom I cried. I couldn't help it. I felt like a kid...nagsusumbong sa nanay.

Without words, I was able to tell my mom how scared,grateful and just how overwhelmed I am with everything that is happening to me.

My brother (who also has a rare condition-cavernoma) was also there to remind me that I can do it. That it is OKAY to have this disease. That it would be a looong journey, a lot of people will support and love me.

My dikit pusod- thank you. I know you knew how i felt( twin thing) that is why you never left my side.

Some people might think I am being a drama queen, but I think it is just proper to tell you what I am feeling and update you with what's going on.

Thank you again. Results of the MRI will be on May 7. I'll post another update soon.

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Mise à jour publié par Katrina Mina Le Apr 29, 2019

hi!! Used the funds for my medicines and labs.

Tuesday balik ulit nephro to get clearance para sa MRI..

Thank you for your support and prayers!!

I hope you still join and support me in this journey 😅😘

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Mise à jour publié par Katrina Mina Le Apr 26, 2019

I am done with my blood works. I am scheduled to do my ECG and Whole Abdomen Ultrasound tomorrow.

After my visit with my endo, she told me that I might have pheochromocytoma because of the episodes that I have (palpitations, tremors, high BP and sweats). She already told me about a blood work that is around 10k in Hi-Precision. I got a bit sad because it’s like my tests are never ending. But when I think about the support I have from you. I am keeping myself positive

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Mise à jour publié par Katrina Mina Le Apr 24, 2019

I went to the hospital yesterday. I am scheduled to do all my labs and medical tests. My doctor requested to have it finish within the week so we can proceed with and prepare myself for a Cranial MRI with Internal Auditory Canal with Contrast.

From there, they will decide what's next for me. I hope to reveive more blessings and kindness from people like you. 😘

Thank you...Thank you...❤💖

I will never get tired of thanking you. I will pray that God continues to bless you. Everything is becoming possible because of your support and love!

Till my next visit this Friday for my Endo.

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