London-Paris Bike Ride for the European Haemophilia Consortium
Fundraising campaign by
Peter Hauptig
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€533.00raised of €500.00 goal goal
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 380 km from London to Paris over three days from Friday 26 to Sunday 28 August in order to raise money for the European Haemophilia Consortium (EHC).
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the EU and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a rare congenital bleeding disorder that occurs in people with a limited amount of either clotting factor VIII (haemophilia A) or clotting factor IX (haemophilia B). Having haemophilia means that an individual’s body cannot naturally stop the bleeding that occurs once a blood vessel is damaged. These bleeds can be caused both by trauma and stress. If the bleed is not stopped and properly managed it can result in damages to the joints (such as ankles, hips and knees), which can cripple an individual (to the extreme an individual is at risk of losing limbs such as legs and arms) and limit his or her range of movements. Furthermore, intracranial bleeds can be both debilitating and fatal.
About Sobi in haemophilia
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We have a history of innovation in haemophilia that stretches back more than 50 years. Today, we continue to build on that history through a global partnership with Biogen, an American biotechnology company, to provide new treatments for haemophilia.
Organizer
- Peter Hauptig
- Campaign Owner
Donors
- Fredrik Gunnarsson Ryrberg
- Donated on Sep 03, 2016
- Johan Nyström
- Donated on Sep 02, 2016
- Erik Lindén
- Donated on Sep 02, 2016
We made it all the way to Paris through the heatwave!
Update posted by Peter Hauptig at 03:19 pmWe managed to cycle from London to Paris! (We used a ferry over the channel...). It was a challenge not least because of the heat and the sun, but the amazingly beautiful landscapes and villages along the way and the great team spirit made it very worthwile. A big THANK. . . . .
Donors & Comments
- Fredrik Gunnarsson Ryrberg
- Donated on Sep 03, 2016
- Johan Nyström
- Donated on Sep 02, 2016
- Erik Lindén
- Donated on Sep 02, 2016
- Louise Edvardsson
- Donated on Aug 30, 2016
- Helena Palmborg
- Donated on Aug 30, 2016
- Anonymous
- Donated on Aug 29, 2016
- Sara Ghalib
- Donated on Aug 29, 2016
- Anonymous
- Donated on Aug 28, 2016
Well done!
- Marie Olsson
- Donated on Aug 28, 2016
- Katy Mazibuko
- Donated on Aug 26, 2016