My name is Tengku Azmir, 30 years old from Perlis, Malaysia. I was diagnosed with a Primary Refractory Classical Hodgkin Lymphoma in 2017. I was just undergoes 32 cycles of chemotherapy including 5 times radiotherapy as I’m fights against Hodgkin’s disease.
I was first presented with prolonged non-productive cough for 1 month and was treated as bronco-pneumonia initially. After that, I was having more breathlessness and chest pain on coughing. I was discovered to have left sided pleural effusion and an USG guided pigtail drainage was done on June 2017. A CT scan for chest, abdomen and pelvis was performed and that revealed a left upper lobe mass measuring 9x6.5x9 cm with extension into mediastinum and also rib erosion on left 2nd and 3rd rib. I was also shown to have hepatomegaly of 20 cms and no apparent nodal disease in the chest or within abdomen based on the CT scan.
I also had a CT guided biopsy of the lung mass on the same month June 2017 and I was referred to the Oncologist as the appearances based on the CT was more like Lung Carcinoma. Initially HPE report back on the same day stated probably a metastatic undifferentiated carcinoma or poorly differentiated adenocarcinoma and hence I was given one cycle of radiotherapy (20Gy/5#) and chemotherapy for Lung Carcinoma (carboplatin).
The final HPE report after thoroughly research eventually confirmed that is was Classical Hodgkin Lymphoma. I was given ABVD regime chemotherapy from July 2017 until December 2017. I first went on 6 cycles of ABVD regime and after that the PET-scan showed the cell is still there and the doctor suggested I for ICE chemotherapy for 3 cycles. After I finished the chemotherapy, the doctor want me to do Autologous Stem Cell transplant but my lung and heart are not in a good condition for transplant. Doctor suggested another option which is Adcetris chemotherapy for 16 cycles. Later on I finished my chemotherapy, doctor again suggested I for Autologous Stem Cell transplant and after my last PET-scan last July 2019.
I am confident with the doctors and the facilities here in Malaysia but the cost is too high for treatment. It feels strange relaying this via social media but I guess that’s the way of things now. Please feel free to transmit positive energy into the universe for me and more importantly for my mother and others close to me that this is going to impact the hardest. My father already passed away and my mother depends on me for her courage and I always showed her that I am healthy even though I am with cancer.
I appreciate all those who have helped in anyway possible. Prayers, donations and just support mean so much to me and my family at this time. The donations will be going to out of medications, large hospitals bills, and multiple things my insurance will not pay for. Thank you so much for your continuing support.