My name is Bobby and I am starting this fundraiser for my wife Judy who has been diagnosed
recently with Chronic Pancreatitis. A year ago my wife complained that she was having stomach
pains, so bad that we ended up at the emergency room. Once we got there they took her in
another room while her 15 year old daughter and I waited impatiently. An hour later they
allowed us to go see her, once she saw us she started bawling her eyes out she said she was
scared because she had to go into emergency surgery.
24 hours later her appendix was out and she was recovering but the pain was still there. The
hospital did an ultrasound and found that there were stones in her gall bladder, which sucked
but at the same time we were happy that there was something under the radar. We thought, this
could be the cause of her pain! So they took her gall bladder out, 2 surgeries in a month's
time and when they wheeled her back to her hospital room we were so excited to see that look
of relief on her face. But the pain was STILL there.
We started seeing that the high paid professionals in the medical industry were not as good as
we had expected. We saw her pain grow along with the amount of scars on her body. A trip to
the hospital was becoming as frequent as a trip to the grocery store. Each time we met with a
new doctor we had such high hopes that this doctor would be understanding and tell us that
everything was going to be ok. But that never happened.
A few months into it and we flew to Maui to get married where I had proposed to her five years
earlier on the same beach. It was better than I imagined and she looked so beautiful but I
saw the pain behind her smile. It made me sad but I made sure that all she could see was how
much I adored her. A week after we came back from the island, we were back in the emergency
room from a severe pancreatic attack which by now we were familiar with. She spent 7 days in
the hospital and they said they were going to get "specialists" in to really investigate.
We had high hopes again because the first couple days, the doctors sounded aggressive. But
they soon started giving up saying they don't see anything and the blood work keeps coming up
normal. One doctor said that we absolutely have to get an endoscopic ultrasound and so the
next 6 months we kept trying to get to the right doctor since my wife was on medical, it was
very hard to do this.
Finally we were approved to see him and he confirmed that there was severe scarring on the
pancreas and was diagnosed with Chronic Pancreatitis. This is a disease that does not get
better, in fact once the pancreas gets scarred it just gets worse until it has to be removed
entirely. She is in constant pain because the pancreas is pretty much digesting itself! She
got this disease from tiny stones that were passing through the ducts and causing scarring.
The scarring made the passage ways smaller making it hard for bile to pass through.
Our only hope for her survival now is to do whats called a total pancreatectomy with auto
islet transplant. This is a HUGE procedure where they are going to completely gut her of her
pancreas, spleen, and part of her stomach. That's the first part, the second part is that
they harvest the cells in the pancreas that produce insulin called the islet cells and infuse
them into the liver so the liver can start producing the insulin in place of the pancreas.
The reason we are looking for funding is because insurance does NOT cover this procedure and
it costs upward of $100k or more. We need this procedure to keep her beautiful smile shining
on for many years to come and we need the help unfortunately. We don't like to ask for help
are usually the ones helping others but now we are reaching out for help. If you have any
questions, please don't hesitate to contact us. Again thank you for reading and if you have
family or friends suffering from this rare and horrible disease, our prayers are with you.