Well where do i start.. My daughters name is Faith, her name sure suits her well, she is not only a miracle baby, ( i wasnt supposted to be able to have children..) but she is a fighter and has been since the day she came out of my stomache with a collaped lung, a whole in her lung, which lead to rapid heart rates and she was not breathing properly. She was in nic u for a week and a half, then when we went home,and she started sleeping 20 hours of a 24 hour day, only waking up to eat.. after many times of being turned away from the emergency room, we were rushed to the childrens hospital and relized she has stage 4 cronic renal (kidney) failure.. doctors didnt think she would make it more then a week.. which is the hardest news for a parent to hear, but she pulled through it and surprised us all, also as leaving the hospital we found out she had hip displaysia so after 3 weeks in the hospital with constant tests, poking and prauding they got her kidney function to a semi stable place, they placed a tube in her nose to feed her and a full body harness ( 23 hours on 1 hour off for 8 months) and sent us home.. after a week her face started going blue, so back to the hospital we went.. with radpi heart rates. We both have been fighting with constant illness's.. today her lung and random blue spells have stopped but were informed her kidney will never get better.. YES kidney.. she was born with 1 and it was to small with lttle to no function.. to give an example her kidneys creatin number was supposed to be at 72 hers was at 166 ( higher the number the worse her function is). We went through many years of hospital stays and visits, needles every month, medications and a Gtube surgery in her tummy to help her eat because she doesnt gain weight. Faith is so strong and really doesnt know any different, she doesnt let it affect her but it takes 24/7 care to keep her healthy which causes me not to be able to work because i cant be in the hospital with her from a week to months at a time in the drop of a hat without being fired.. i hate asking for money or even favors im usually the one giving them out.. but today i ask for some support for faith because im having a hard time coming up with the money that needs to be saved up for when the transplant time comes.. even visits monthly is hard to afford.. it is a huge expense and not knowing how long we will be there according to diaylasis, looking for a donor, and the transplant and healing time..it could take up to 2 weeks - 5 months maybe longer. I will be sitting by her side 24/7 no matter what. Unfouranatly i wont be able to afford to buy any of her favorite foods ( she refuses to eat any hospital food and her eating and drinking intake has a huge affect on her health) so she will definanly want her subway and fruits and vegies which i will not be able to provide, and for a mother that is hard to swallow when your daughter is fighting so hard to get better and stay strong i just want her to have the best of everything to keep her happy..i think every mother would agree with me... Faith is absolutley the best little girl i could of ever asked for and i am so blessed to have that little angel in my life. Im trying hard to save every nickle i have, including the bottle drives i do in my building/town.. but i really dont think that will cut it.. the transplant can happen between 1-3 years .. since the day faith was born we have not been able to travel and if any money is left over i would LOVE to use that money for faith when she uses her wish from the Wish Founadtion... so in conclusion anything will help us and it will be very much appreciated, even if you cant donate please do not feel bad, thank you for reading our story. God bless <3 xox
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