Evie-Anne’s Sensory Room
Fundraising campaign by
Michelle Peel
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£387.00raised of £1,500.00 goal goal
My Name is Evie-Anne & I am 3.5 years old, I have 1p36 Deletion Syndrome, a very rare genetic chromosome adnormality that affects me in many ways.
I see very very bright light's only, I am registered Blind, I have many forms of epilepsy, distonia, Eczema, asthma, gastro reflux and many other medical issues.
I am not allowed to eat by mouth, I am fed special forlulated milk, that means my body can digest it without working too hard, I am fed by gastrostomy tube directly into my tummy every 3 hours by a machine.
I have very low weak muscle tone, and I am completly wheelchair dependant, my Doctor's say I will never walk, talk or even sit up unaided, but what do they know hey?
You can learn more about me, and my condition from my website!
www.evie-annes-adventures.com
Last year my mommy & daddy gave all my christmas money to various childrens charity's in exchange for some specialist sensory equipment for me, it is expensive, and helps me to relax, it also helps me learn, I am currently learning with the help from the teachers at my special school to use a special switch which will help me to communicate with you. It also helps me to use the tiny bit of sight that my eyes do have, I love to watch the bubble tubes and there colours shine brighly, I always smile and laugh whenever I am in a sensory room.
My mummy & daddy are raising money to get a instulated wooden cabin in the garden to turn into my very own sensory room, this will mean that I can use the equipent and learn everyday instead of just on occasions when I can use the school facilitys!
Please help by donating as little as £1, every penny helps, and every little girl deserves to smile !
Organizer
- Michelle Peel
Donors
- Antonio Ices
- Donated on May 12, 2013
- Guest
- Donated on May 05, 2013
- Kathy Standing
- Donated on May 05, 2013
No updates for this campaign just yet
Donors & Comments
- Antonio Ices
- Donated on May 12, 2013
- Guest
- Donated on May 05, 2013
- Kathy Standing
- Donated on May 05, 2013
- John-Paul
- Donated on May 04, 2013
For your beautiful smile, from your little 1p36 brother xxx
- C Dei'bla
- Donated on May 03, 2013
Sorry can't be there Monday, good luck to you all tho & I really hope you raise the money for Evie-Anne because noone deserves this more than you all & especially Evie-Anne!! Big hugs to you all <3 xxxxx
- Sophie, Simon, Reuben, Phoebe and Isabella Vincent
- Donated on May 01, 2013
Sorry we won't be there on Monday but I hope it is a fun and successful day. Love to all x
- Charlie's Nanna and Grandad
- Donated on Apr 28, 2013
Enjoy yourselves, listening hard you might hear us cheering you all on xxx
- Sarah Hatt
- Donated on Apr 28, 2013
have fun learning beautiful girl
- Alan,Gwen and Chloe
- Donated on Apr 27, 2013
Sorry we can't be at your fun day next week, hope you all have a great time. Alan, Gwen, Chloe and Ketsia xx
- Meggie feeney
- Donated on Apr 27, 2013
Uve touched my heart!! Good luck and anything I can do just holla...