ERYTHROMELALGIA WARRIORS FUNDRAISER 2023-2024

The Erythromelalgia Warriors is a small international self-funding voluntary organisation that provides solutions- focused support , factual up- to- date information & erythromelalgia -related resources to patients, loved ones, health providers & medical professionals worldwide. We are dedicated to raising greater awareness of erythromelalgia, supporting & conducting independent/in house research , and educating, encouraging and empowering all those affected by erythromelalgia.

Our organisation receives no sponsorships or grants & we rely on the generosity of our members & supporters to maintain our online /outreach communities & website , subsidise the development, production & distribution of educational resources , fund awareness campaigns & initiatives as well as support and conduct much needed independent research (see our Global Awareness Campaign , Education/ Schools /Universities Project & Burning for a Cure Research Fund ).

Like many rare disease organisations we are struggling to survive & meet the demand for our services

No matter how much you can afford to give, as a one-off donation, through regular giving, or by fundraising for us, your donation matters. Every donation received , however small, adds up and helps us continue our invaluable work and make a positive difference.

Giving is not just about making a donation. It is about making a difference and we are determined to raise global awareness and understanding of erythromelalgia and embody the active hope and encouragement our community needs.

Thank you!

IF YOU WOULD LIKE TO KNOW MORE

You may not be aware that we provide a vast range of EM-related services & resources; for example, free 24- hr solutions- focused support & information services, a well-stocked EM research library , large global database of EM-familiar doctors , the latest drug development news as well as a confidential email service , support calls, Q/A service , care pack for our little EM warriors and adult EM information/care packs.

We also supply up-to-date educational material, free erythromelalgia-related resources to patients and medical professionals and support independent research & conduct in house research projects.

We sponsor offline awareness campaigns, online initiatives, educational projects in schools/colleges and fun, exciting social media events where members can interact , make friends, & win fabulous prizes. We have a wonderful EM shop full of cooling products, awareness clothing & informative leaflets.

All our amazing volunteers have erythromelalgia, which means that they understand and empathise with what you and your family are going through. Not only do they all share the same passion to empower, educate and encourage you ; but they reach out in friendship & stand in solidarity with all those touched by erythromelalgia to reassure them that they are not alone .

This year we are also trying to raise funds to continue our big website restructure as well as website hosting, research subscriptions, printing costs (EM -related material resources and fact sheets etc) , distribution costs, child care packs and our offline awareness, research and education campaigns

HOW TO DONATE

This funding page accepts donations via PayPal , credit & debit cards. The default currency is set to USD but this can be changed to your preferred currency by clicking the tiny arrow > (convert currency) situated next to the USD feature . After putting the amount to donate, click on the red box which will take you our PayPal . On the PayPal site you can choose to login to your PayPal account( if you have one), create a PayPal account( if you want), or you can opt to pay by debit or credit card.

Donations can also be made directly to our account EM WARRIORS PAYPAL and website members can use our website options WEBSITE- GIVING BACK . Should you decide to donate directly and not via this gogetfunding page , please put the reference ' Fundraiser 2024'.

Because your donation matters we will be gifting all donors an erythromelalgia warriors awareness bracelet( or ribbon pin) & eye-catching highly informative EM leaflets.

Remember, Erythromelalgia Warriors depends on your support and generosity to survive , meet the demand for our services & continue our invaluable work to make a difference and bring about change.

WHAT IS ERYTHROMELALGIA?

Our excellent Erythromelalgia Facts video offers a comprehensive understanding of erythromelalgia and highlights facts someone living with EM wants you to know. Note: you can change the video's playback speed by moving the cog wheel 'settings'

To add our video to your FB page or other social media, copy and paste the link EM FACTS VIDEO 2023 . Alternatively, you can share from the Erythromelalgia Warriors YOU TUBE

RECEIVING YOUR THANK YOU GIFT !

This year we are gifting every donor an Erythromelalgia Warriors awareness bracelet (small, medium, large and adjustable), or a ribbon pin. Plus, you will receive our bright red eye-catching highly informative erythromelalgia leaflets .

Claiming your gift is easy. After donating, you will receive an email telling you how to order your gift & your personal reference number . Please note that your gifts are not automatically dispatched - you must order them!

ERYTHROMELALGIA AWARENESS: OUR CHARITY BRACELETS

ERYTHROMELALGIA AWARENESS: OUR CHARITY PINS

OUR GLOBAL AWARENESS CAMPAIGN 2023/2024

Doctors, health providers, clinics, hospitals, pharmacies, educational institutions and members are all coming on board to help us raise erythromelalgia awareness and raise research funds. We are dedicated to raising global awareness and our campaign provides fantastic ,free, eye-catching, highly informative bright red resources to everyone worldwide .

Image: Staff in a London UK clinic are raising EM awareness.

Images: Examples of just a few of our free resources

THE EDUCATION (SCHOOLS, COLLEGES & UNIVERSITIES)PROJECT 2023/2024

Our Education Project targets school children to young adults at university or college. We believe it is imperative that we educate the younger generation ,future medical professionals and researchers if we want to see changes in the way erythromelalgia and EM-related conditions are researched, diagnosed and managed. Our courageous young EM Warriors are always super eager to raise awareness of their condition & love designing t-shirts, drawing posters , making memes & carrying out school projects. Good job our EM Warriors HQ keeps plenty of community awards in stock in order to acknowledge their outstanding achievements !

WHO ARE THE EM WARRIORS?

The Erythromelalgia (EM) Warriors is a dynamic non-profit international organisation dedicated to raising awareness , independent research , & educating, encouraging & empowering all those living with or affected by erythromelalgia . We are a volunteer-led support and information network that provides invaluable free 24-hour online and offline outreach services worldwide.

OUR MISSION

To empower lives touched by erythromelalgia by facilitating the tools for self-advocacy.

To advance up-to-date knowledge , raise awareness and educate through a strong social media presence, innovative online campaigns, and range of erythromelalgia and erythromelalgia-related resources.

To develop , print and distribute free information as part of our offline global erythromelalgia awareness program and education/schools project.

To sponsor research and to support and conduct independent research and in house projects through fundraising.

OUR VISION

A world where there is greater understanding of EM and where the hope of a cure becomes reality.

NOT YET A MEMBER ?

JOIN OUR FB CHAT COMMUNITY

JOIN OUR WEBSITE

JOIN OUR INSTAGRAM

If you are not yet a member , please consider joining one of our many online platforms and communities - we would love to meet you!

To get involved in our awareness campaigns, education project , organise a fundraising event , order products from our shop, request a pack or for support &information services, please contact our admins or our team at [email protected]

Thank you so much for donating!