Bone Marrow Stem Cell Transplant – HSCT For Erika

Fundraising campaign by Erika M Hattingh
  • US$563.00
    raised of $60,000.00 goal
0% Funded
11 Donors
Raised offline: $425.00
Total: $988.00

The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate

Help this ongoing fundraising campaign by making a donation and spreading the word.
Show more
Show less

History and Background

Erika has had Multiple Sclerosis since she was 27 years old and Transverse Myelitis since 2016, when she got paralyzed. According to recent brain scans, her MS is active and a relapse could be severe and cause other disabilities. There is hope, however. A bone marrow transplant can put her MS into remission, and even reverse some of the damage.

In 1994 Erika received the devastating news that she had Multiple Sclerosis. She became extremely depressed and anxious. This was a heavy burden for her and her husband, and their hope for a bright future became a harrowing nightmare.

Multiple sclerosis or MS is an autoimmune disease which destroys the insulating layer of myelin that surrounds the nerve cells. The myelin acts like the insulating layer surrounding an electrical wire, and allows for impulses to flow from one region to the next. The damage to the myelin disrupts the ability of parts of the nervous system to transmit signals. This can cause any symptom from paralysis to blindness and loss of control over bodily functions. At the time of the first diagnosis, twenty years ago, Erika had paralyses of the optic nerve. “I was devastated to learn that I have MS. After 6 months of feeling scared and worried, I decided that I was going to live life to the fullest in spite of my debilitating disease” she reported.

One morning in September 2016, about fifteen minutes after she woke up, her legs literally gave way underneath her and she became paralyzed. “At first I thought that it was just a flair-up of the MS” she said. Erika had Transverse Myelitis a terrible disease on the MS spectrum. After two months confined to a hospital bed and many therapy sessions, she had to face the fact that she was permanently paralyzed. This was followed by an even worse depression that lasted for more than a year. Erika reports that she did not want to live anymore. She was overcome by a feeling of hopelessness. She reports feeling like she was a burden to everybody.

“I felt ashamed as if I had no more value in the world and in the lives of my loved ones.” Erika reports that her family suffered a great deal. Her daughter was diagnosed with depression and her son had suicidal thoughts. Her husband reportedly became withdrawn and silent. The whole family was in mourning.

Sister Erika is a nursing sister by profession and loves her job. When she became paralysed she had to leave her work at a school for children with special needs. Currently she is working as a psychiatric sister at a private practice. Initially her MS was relapsing remitting MS which is characterised by unpredictable relapse followed by months or even years of silence. Unfortunately her MS has progressed to the Primary Progressive MS sub-type. Her future looks dark. Further relapses could cause more severe symptoms.

A Stem Cell Transplantation attempts to “reboot” the immune system which is responsible for damaging the brain and spinal cord in MS. This is called Hematopoietic Stem Cell Transplantation or HSCT. Blood cell-producing stem cells are harvested and stored before much of the immune system is destroyed using chemotherapy drugs. The stored hematopoietic stem cells are reintroduced to the body from where the new stem cells migrate to the bone marrow. Over time the immune system is reconstituted. This can stop MS and give her a chance to get some functionality back. There are examples of people walking again after HSCT treatment, and she is hopeful that she can be one of them.

It is Erika’s dream to stand next to a patient’s bed, giving loving and life supporting care.

The cost of the Hemopatic Stem Cell Treatment will be an estimated R850 000. I am truly grateful for your support.

You are simply the best.

Official Website:

http://www.butterflycocoon.co.za

Further reading:

Multiple Sclerosis

https://www.healthline.com/health/multiple-sclerosis/prognosis-and-life-expectancy


Stem Cells in MS

https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/symptoms-causes/syc-20350269


Youtube Videos :

Multiple Sclerosis Made Easy - Pathophysiology,symptoms,Treatment


https://www.youtube.com/watch?v=EnV0w9RxFho

Multiple Scelerosis


https://www.youtube.com/watch?v=M7O78LvrNSQ


Thank You

Organizer

  • Erika M Hattingh
  •  
  • Campaign Owner

Donors

  • Anonymous
  • Donated on Apr 26, 2021
Amount Hidden
  • Anonymous
  • Donated on Apr 25, 2021
$35.00
  • Anonymous
  • Donated on Apr 22, 2021
Amount Hidden
Jun 27

Spread the word!

Update posted by Charl Vorster at 03:45 pm

We are truly grateful to the people who have donated, but as of now the fund raising has gone a bit slow, Erika is hosting art classes over weekends to also gather a little more money for the campaign. So please, do remember to share this funding campaign with friends

See update
0
Jun 27

Spread the word!

Update posted by Charl Vorster at 03:44 pm

We are truly grateful to the people who have donated, but as of now the fund raising has gone a bit slow, Erika is hosting art classes over weekends to also gather a little more money for the campaign. So please, do remember to share this funding campaign with friends

See update
0

Donors & Comments

11 donors
  • Anonymous
  • Donated on Apr 26, 2021
Amount Hidden
  • Anonymous
  • Donated on Apr 25, 2021
$35.00
  • Anonymous
  • Donated on Apr 22, 2021
Amount Hidden
  • Giovanni Monaco
  • Donated on Apr 21, 2021
  • All the best !

$30.00
  • Anonymous
  • Donated on Apr 21, 2021
Amount Hidden
  • Anonymous
  • Donated on Apr 21, 2021
Amount Hidden
  • Anonymous
  • Donated on Apr 20, 2021
Amount Hidden
  • Anonymous
  • Donated on Apr 20, 2021
$40.00
  • Anonymous
  • Donated on Apr 10, 2021
$5.00
$10.00
Show more donors

Followers

4 followers
Hermanus Louw
Angella Bligh
Susan Naudé
Erika M Hattingh

Support Campaigns

campaigns

Create a support campaign in seconds!

Support campaigns allow you to get your own fundraising page dedicated to 'Bone Marrow Stem Cell Transplant – HSCT For Erika'

You'll have your own unique link that you can share, and all funds raised will go directly to 'Bone Marrow Stem Cell Transplant – HSCT For Erika'. It's the ultimate way to show your support!

Create support campaign
US$563.00
raised of $60,000.00 goal
0% Funded
11 Donors
Raised offline: $425.00
Total: $988.00

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

Help this ongoing fundraising campaign by making a donation and spreading the word.

Not Ready to Donate?

Did you know a 10 second Facebook share raises an average of $25?

Share on Facebook