Endometriosis and adenomyosis excision surgery

Fundraising campaign by Tea Lazic
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Tekst na hrvatskom jeziku se nalazi ispod verzije na engleskom.

I am 22 years old student from Croatia. I received my diagnosis of endometriosis and adenomyosis when I was 21 years old, 10 years after my symptoms have started for the first time. I have been experiencing extremely painful periods ever since I got my first period when I was 12 years old. While on my period, I cry, shake in pain and pass huge blood clots. Also, I often can't breathe, I lose sense in my legs and feel like I am stabbed repeatedly in my lower abdomen and lower back for hours. I am unable to wash my face, make myself food, sleep or even lie down still for 3 days out of every month. 4 years ago my symptoms started to affect my everyday life severely. My everyday symptoms now include : migraines, chronic pelvic pain, rectal pain, vaginal spasm, chronic vaginal burning and pain, pressure on my abdomen and bladder, burning with urination, frequent urination and bladder pain, extremely painful bowel movements, fatigue, painful cervix, feeling of a ball in my perineum, lower back pain, pain with sitting or exercising, extreme superficial dyspareunia and bearable deep dyspareunia. For the treatment I have tried acupuncture, going gluten, dairy and sugar-free, tinctures, supplementation, various painkillers that ruined my gut health and caused GERD. I was forced to try various birth control pills which caused me severe side effects. Birth control pills never really decreased my pain intensity, while caused me hormonally mediated vestibulodynia, from which I am still trying to recover. Between 2012. and 2022. I have visited at least 18 gynaecologists, 2 pain specialists, 1 neurologist, 2 psychologists, 1 psychiatrist and 2 gastroenterologists. During that time I have received medical gaslighting, verbal abusing and unnecessary painful procedures. I knew I had endometriosis at least 5 years before my official diagnosis, but nobody wanted to listen to me. In 2021. I met my surgeon who gave me a chance for the first time. For the first time in my life, I felt some validation and hope for my future. I gave that surgery my entire energy and believed that It will give me my life back.

9 months later I finally had endometriosis excision surgery. Endometriosis and adenomyosis have been confirmed via biopsy and endometriosis was found on my uterus, on uterosacral ligaments, in recto vaginal cavity and on peritoneum. Waking up from surgery and hearing confirmation of my diagnosis was a huge relief at first, but soon it was followed by the biggest disappointment I have ever experienced. I remember vividly, my surgeon said that he excised endometriosis, but he did not want to even try to operate on adenomyosis so adenomyosis was left inside me. He said he didn't want to excise adenomyosis because "I need to fall pregnant first". I felt so small. So defeated. Like my wishes, my life chances and my suffering didn't matter. From that moment I knew in my heart that I won't feel relief from this surgery.

I felt some relief from endometriosis for 2 weeks in recovery and after that all progress disappeared. Next 4 periods that came after the first one were absolutely devastating. Right now, I feel like I have never been treated, all my progress is gone. My everyday symptoms and feeling of fullness in my pelvis where endo was excised returned. I am beyond desperate and heart broken because I feel like my better future is once again taken from me before I even got to experience any of it. In the meantime, for my vestibulodynia, I have tried 2 Mona Lisa Laser sessions, botox injections for hypertonic pelvic floor muscles, DHEA suppositories, estrogen cream, dilators, CBD oil, TENS therapy, pelvic floor stretches and yoga. Hormones and injections worked, but I am still unable to feel any benefits because of oversensitive nerves. My specialist concluded that my vulvodynia is now possibly coming from Pudendal Neuralgia, which is coming from endometriosis on uterosacral ligaments, which further means that without proper endometriosis and adenomyosis surgery I won't be able to recover from vestibulodynia.

I want endometriosis specialist from Romania to help me heal with proper excision surgery of both adenomyosis and endometriosis that has been left. I make no income since I'm not physically able to work, and I am still at University. I have decided to make this donation account because I believe that my body deserves better care then my country can provide at the moment. I don't want to spend next 10 years in pain, working for my surgery, while my colleagues will be working for their independent life. I don't want to spend another decade in pain and depression trying to make money for medical care, only to find out that there is nothing to be saved any more by that time. I don't find this step of asking for help easy, but I think it is the right thing to do for my future. Any donation would mean the world to me🎗️💛.


Dolazim iz Hrvatske, imam dvadeset i dvije godine te studiram komparativnu književnost i sociologiju na Filozofskom fakultetu Sveučilišta u Zagrebu. Sumnja i neslužbena dijagnoza endometrioze su uspostavljene kada sam imala dvadeset i jednu godinu, dok je službena dijagnoza uslijedila godinu dana kasnije, deset godina nakon što su počeli prvi simptomi moje bolesti. Od prve menstruacije koju sam dobila s dvanaest godina do danas, svaka menstruacija je bila ekstremno bolna. Radi se o bolovima koji ne mogu biti utišani tabletama za bol, o bolovima zbog kojih tri dana ne mogu ustati iz kreveta, od kojih ne mogu spavati, koji me satima tjeraju da se tresem, plačem, gubim svijest, dobivam nagone na povraćanje i gubim osjet u nogama. Riječ je o bolovima koji u potpunosti kontroliraju život par dana mjesečno, koji se ne mogu pretrpjeti, o kojima se ne može šutjeti i pod kojima je nemoguće funkcionirati. Na takve dane moj najveći uspjeh je oprati lice i zaspati. Prije četiri godine bolest se značajno pogoršala i počela polako zauzimati sve veći dio mog svakodnevnog života, da bi na kraju u potpunosti okupirala moj život. Moji svakodnevni simptomi danas uključuju: migrene, kroničnu bol u zdjelici, kroničnu bol u donjem dijelu leđa, bol kod sjedenja, vulvarnu bol i pečenje, rektalnu bol, osjećaj lopte u perineumu, grč mišića zdjeličnog dna, osjećaj stalnog pritiska u trbuhu i mjehuru, izuzetno bolne stolice, pečenje i bol pri mokrenju te preučestalo mokrenje, dispareuniju i kroničan umor. Pokušaji liječenja mojih bolesti do danas su potpuna promjena prehrane, što uključuje izbacivanje glutena, šećera i mliječnih proizvoda, zatim akupunktura, suplementi, prirodne tinkture, čajevi, TENS terapija, joga, istezanja, CBD ulje, razne vrste jakih tableta za bol koje su mi u konačnici uništile želudac i uzrokovale GERB. Liječnici su forsirali pokušaje liječenja raznim kontraceptivnim pilulama, unatoč mom užasnom reagiranju na njih i brojnim nuspojavama. Uzimanje kontracepcijskih pilula nikada nije umanjilo moju bol te je na kraju rezultiralo hormonalnom vestibulodinijom od koje se još uvijek pokušavam oporaviti. U periodu između 2012. i 2022. godine, posjetila sam najmanje osamnaest ginekologa, dva psihologa, dva specijalista za bol, jednog neurologa, dva gastroenterologa i jednog psihijatra. U tom razdoblju sam od liječnika doživjela učestalo verbalno maltretiranje, umanjivanje moje boli, nepovjerenje i nepotrebne bolne medicinske procedure. Znala sam da imam endometriozu najmanje pet godina prije službene dijagnoze, ali me nitko nije htio slušati.

2021. godine sam upoznala kirurga koji mi je prvi vjerovao i dao šansu za operaciju. Položila sam sve nade u operaciju i devet mjeseci nakon, uz puno poteškoća i odgađanja, napokon sam bila operirana. Biopsijom su potvrđene endometrioza i adenomioza te je endometrioza nađena na trbušnoj stijenci, u rektovaginalnom kanalu, na maternici i na uterosakralnim ligamentima. Potvrda dijagnoze mi je puno značila, ali riječi kirurga koje su uslijedile su me potpuno porazile. Kirurg je izrezao endometriozu, ali adenomiozu nije dirao jer "prvo moram roditi". Osjećala sam se toliko maleno i beznačajno, kao da moj život, moja budućnost, moje želje i bol nisu važni. Osjetila sam poboljšanje dva tjedna nakon operacije, a nakon toga je sav napredak iščeznuo. Trenutno se osjećam kao da nikada nisam bila operirana. Ne osjećam poboljšanje niti u jednom polju svog svakodnevnog života.

Odlučila sam istražiti opciju operacije izvan Hrvatske i pronašla kirurga u Rumunjskoj koji prakticira kvalitetno izrezivanje žarišta endometrioze i adenomioze. Cijena operativnog zahvata je oko 4000 eura ( trideset tisuća kuna) ne uključujući troškove puta i smještaj. S obzirom na to da fizički nisam u stanju raditi te da još uvijek studiram, odlučila sam pokrenuti ovu donacijsku stranicu. Traženje financijske pomoći mi ne predstavlja jednostavan korak, ali mislim da je dugoročno ispravan za moje zdravlje. Smatram da moja bolest zaslužuje puno bolji i profesionalniji tretman od onoga kojeg moja zemlja može pružiti. Također, s obzirom na to da su adenomioza i endometrioza progresivne bolesti te da se endometrioza agresivno širi na okolne organe, shvatila sam da nemam vremena za gubljenje. Ne želim provesti sljedećih deset godina radeći za operaciju i medicinske tretmane da bi na kraju došla u situaciju u kojoj više nemam što spasiti. Svaka donacija bi mi jako puno značila🎗️💛.

Organizer

Donors

€1.00
  • Anonymous
  • Donated on Apr 27, 2022
  • Sretno! ♡

€13.00
  • Matea Fligić
  • Donated on Apr 08, 2022
  • Sretno! 🍀

€10.00

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Donors & Comments

10 donors
€1.00
  • Anonymous
  • Donated on Apr 27, 2022
  • Sretno! ♡

€13.00
  • Matea Fligić
  • Donated on Apr 08, 2022
  • Sretno! 🍀

€10.00
  • Marko Skrbina
  • Donated on Apr 08, 2022
€10.00
  • Anonymous
  • Donated on Apr 04, 2022
€10.00
  • Anonymous
  • Donated on Apr 01, 2022
€10.00
  • Lea Biličić
  • Donated on Mar 31, 2022
€5.00
  • Anonymous
  • Donated on Mar 31, 2022
€10.00
  • Lea Troha Rajić
  • Donated on Mar 31, 2022
€5.00
  • Vedran Taslidzic
  • Donated on Mar 31, 2022
€100.00
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