US$3,620.00raised of $6,000.00 goal goal
The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate
Dear members, followers, friends, loved ones,
Our usual fundraisers and fundraising activities the last 2 years have been low key due to Covid-19 and, as such, we are struggling to keep our invaluable organisation going .
This year we have additional costs : the restructuring our website as a research hub, the printing of our new erythromelalgia brochure and more EM-related fact sheets (SFN , facial, genital, weight loss, sexual relationships etc.) as well as the updating, printing and continued free distribution of our eye-catching, highly informative erythromelalgia leaflets .
Our erythromelalgia leaflets are provided free of charge to sufferers, loved ones , students, and medical professionals worldwide and distributed as part of our very successful Global EM Awareness Campaign. We also supply EM materials to schools, colleges, and universities in our Education Project. Covid-19 may be preventing fundraising events but our organisation still managed to distribute nearly 15,000 erythromelalgia leaflets in 12 countries, which was no easy feat!. Website hosting , research subscriptions, postage, stationary , support calls , resources and other miscellaneous costs also need financing.
Here are just a few of our services and resources you might not know about : free solutions focused support and information, an extensive research library ( we subscribe to multiple journals) , a large global doctor's database - updated monthly, access to a vast range of up-to-date highly educational EM-related topics, polls , facts , confidential email service, support calls , and Q/A service with experts . More importantly, our organisation offers understanding, compassion, solidarity, and friendship .
We impart knowledge across multiple online platforms as well as offline outreach services and empower those touched by erythromelalgia by facilitating the tools for self -advocacy. We guide those living with EM through the diagnostic process and work-up. We educate on how best to manage symptoms and flares, we recommend tests , treatment options, the best drug protocols , and keep you informed regarding clinical trials . We help members prepare for their consultations and even offer a one-to-one personal email service to discuss and answer questions. We provide tips and strategies on how to manage erythromelalgia - covering lifestyle changes, how to minimise triggers , optimal cooling strategies and we inform members about concurrent conditions and common comorbidity in erythromelalgia patients. We even give support calls! .
Our organisation also runs exciting online events and activities in our communities where members can interact and win fabulous freebies.
We know exactly how it is to live with erythromelalgia as all our amazing volunteers have erythromelalgia too. Some of the team have localised EM, others widespread; some volunteers are mobile whilst others are sadly bed or wheelchair bound - but they all share the same passion. They all strive daily to provide every single member , parent, child, medical professional and loved one with an amazing service . We desperately want to keep those services free! We do not charge memberships or hassle for donations throughout the year ; in fact, we hate asking you for money but we just cannot continue without funds!
HOW TO DONATE
Our Go Get Funding page accepts donations via PayPal and Cards. The currency states USD but you can change the currency just by clicking the little arrow > next to the USD text Donations can also be made directly to our PayPal Make a donation to The Erythromelalgia Warriors or via our secure website http://erythromelalgiawarriors.ning.com/giving-back.
If you choose to donate directly, please ensure that you put the reference: Fundraiser 2022
Please contribute what you can afford . We know times are hard at the moment but donations, however small, add up and allow us to achieve amazing things.
You can donate in any currency you wish (just Google the day's exchange rate).
Remember, it is only through continued global awareness and education that we can hope to bring about change. It is only with your donations and support that we can hope to raise the funds necessary to continue our mission towards achieving this.
WHAT IS ERYTHROMELALGIA?
Watch our simple ' Erythromelalgia Facts' video to understand how this syndrome affects sufferers.
If the video is too fast or slow - change the playback speed ( the cog wheel on video says settings)
To add our video to your social media, copy and paste the link Erythromelalgia Facts Video 2022 or share from our YouTube channel.
JUST TO SAY THANK YOU DURING MAY!
We are so very grateful for your donations that we will be gifting an Erythromelalgia Warriors awareness pin or awareness bracelet with every donation over $25 USD or £25 sterling
After you have made your donation, you will receive an email with your reference number that informs you how you can order your free erythromelalgia pin or bracelet.
Please note that you MUST order your charity pin or bracelet from us (we do not just routinely send the bracelets or pin).
Closing date for the free gift is December, 2022.
BURNING FOR A CURE : AWESOME EM WARRIORS AWARENESS BRACELETS
ERYTHROMELALGIA AWARENESS: OUR EYE-CATCHING EM WARRIORS CHARITY PINS
THE GLOBAL AWARENESS CAMPAIGN
RAISING ERYTHROMELALGIA AWARENESS IN A LONDON CLINIC. UK
EXAMPLES OF FREE EM WARRIORS AWARENESS RESOURCES
THE SCHOOLS, COLLEGES & UNIVERSITIES AWARENESS PROJECT
Aidan, aged ten, received our community award in 2021 . This courageous young man designed two amazing t-shirts and even composed a song about erythromelalgia to help raise awareness of erythromelalgia, which you can find on our YouTube.
WHO ARE THE EM WARRIORS?
The Erythromelalgia (EM) Warriors is a dynamic non-profit international organisation dedicated to raising awareness of erythromelalgia and educating, encouraging and empowering all those living with or affected by erythromelalgia and its comorbidities. We are a volunteer-led support and information network that provides invaluable free 24-hour online and offline outreach services world wide.
To empower lives touched by erythromelalgia by facilitating the tools for self-advocacy. To advance up-to-date knowledge , raise awareness and educate through a strong social media presence, innovative online campaigns, and range of erythromelalgia and erythromelalgia-related resources. To develop , print and distribute free information as part of our offline global erythromelalgia awareness program and schools/education project. To sponsor research and support independent projects through fundraising.
A world where there is greater understanding of EM and where the hope of a cure becomes reality.
NOT YET A MEMBER ?
If you are not yet a member , please consider joining one of our many online platforms.
It is free to join our organisation - we would love to meet you!
To get involved in our awareness campaign or education project; help with our website or organise a fundraising event, please contact our team at [email protected]
For more support or information, please email support at [email protected].
Thank you so much for donating!
EXAMPLES OF AN ERYTHROMELALGIA FLARE
THANK YOU! June 2022 updateUpdate posted by ERYTHROMELALGIA WARRIORS at 05:53 pm
A huge heartfelt thanks to all who have donated. The team and I are so grateful for your continued support. We know times are hard for everyone but the smallest donation helps! . We are excited to have hit the halfway mark so please continue to share our link to
Update 22/09/2021Update posted by ERYTHROMELALGIA WARRIORS at 03:24 pm
A huge thank you to the amazing members that have generously donated in support of our organisation. We know that financially things are pretty tough so we are truly touched by the sacrifice you have made. Sadly, we are still missing 80% of our target so please make a concerted