Donna’s life of Lyme

Update posted by Kathryn Ratcliffe On Jul 01, 2015

So I go away for a couple of weeks and I really can't believe the progress Donna has made!

She was only just able to walk from her sofa to her sink, a mere 5 steps, without having to grab on to something for support. Now she's able to walk around her local path with just one crutch!

On my last visit we were talking about learning to activate the glute muscles independently, as it has come up in conversation previously, and she struggled to kneel on the floor when trying to show me how to practice it. Now she's able to kneel on the floor and lean backwards!!

All this improvement has been down to her determination to get better, she is currently using her knowledge as a sports scientist to do her own rehab but has been in contact with a specialist rehab centre to begin arrangements for some sessions. This is possible because of all your kind donations, so thank you.

I know Donna wants to give you all another update, but I think she's out enjoying the sunshine at the moment so it will follow soon.

Thanks again to all who have donated and shared Donna's story, it means so much to know how much people care for her.

Kat

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Update posted by Kathryn Ratcliffe On Jun 02, 2015

Message from Donna

Firstly, I'd like to thank Kat for setting up this fundraising page. I would never ask for this kind of help, which is exactly why she did it! Also, to my other sneaky friends who have been busy plotting behind the scenes.

To evey single person who has taken the time to read my story, share the page or donate, I can never thank you enough! Your response has beeen overwhelming and even though I feel embarrassed, I am also extremely grateful to every single person who has offered to support me. Thank You All!


Here's a little update....

I've been home for a week and just starting to settle, all thanks to my amazing friends and family. My cats are extremely cuddly and encouraging me to get out of bed every morning! Lol. Sequol are providing a great care package which includes 4 carers a day, community nurses, occupational therapists and physios. My GP is also doing regular home visits to keep a close eye on me. Spending 10 weeks on a dementia ward had inevitable side effects!

The simplest tasks are no longer simple, but I suppose all these new challenges will keep me motivated. I'm getting really frustrated with physical rehab because it's so slow!!! Then I compare my abilities from week to week and I feel proud, strong and positive about everything again.

Biggest achievements this week....

Standing up long enough to have a proper shower! Getting up & down stairs on my bum. Walked about 20 metres with the frame (killer!) Sat at dinner table and ate properly with a knife and fork. (1st real meal, Sunday roast, in 3 months!) I couldn't do any of these things just 10 days ago!!!

Neurological symptoms of Chronic Lyme started affecting my cognitive abilities about 5 years ago. Nothing too obvious but I get confused easily, my memory is terrible, I struggle to concentrate or deal with distractions. Even this has taken over an hour to type! Just 3 weeks ago I was also diagnosed with Adrenal Insufficiency, most likely caused by Chronic Lyme. I'm awaiting further tests but will now have to be on medications for life.

It's embarrassing to admit these things but I want people to understand how serious Lyme Disease is, so that they can protect themselves, get diagnosed quickly, get proper treatment and avoid travelling down this road of Chronic Lyme. I'm hopeful that with the right treatments I still have time to reverse some of the symptoms, slow down the onset of Lyme, maybe even get back to sporting fitness with the help of specialist rehab. That's all possible because of your help!

Remember my motto? "Beat It, Manage It or Adapt!" Thanks to all of you, I can and I will! x x
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In the little amount of time I have spent with Donna she is just an incredible sports therapists and a very determined individual.

Gareth Johnson

Backed with £50.00 On Aug 09, 2015

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Good luck!!!

Guest

Backed On Jul 10, 2015 Amount Hidden

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Nina

Backed with £5.00 On Jun 30, 2015

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Loves you Aunty Donna :) xx

Lola Joyner-Riddell

Backed with £5.00 On Jun 30, 2015

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You are amazing and so strong, we just need to get your back to full fitness so we can get our walking buddy back xxx

Stacy J

Backed with £50.00 On Jun 30, 2015

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You are amazing and I cannot wait to see what you will do next with your life. Love you dear friend xxx

Stacey Mundy

Backed with £20.00 On Jun 29, 2015

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Stephanie Lee

Backed with £5.00 On Jun 29, 2015

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Donna, you're an inspiration as well as a brave lady and a great Sports Therapist!

Sharon Yeates

Backed On Jun 18, 2015 Amount Hidden

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Sending good wishes. I am a friend of Jemma Oakes. xx

Lisa Dawson

Backed with £25.00 On Jun 17, 2015

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Pauline Kay

Backed On Jun 09, 2015 Amount Hidden

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