My son Ahmed Farhad who is almost 3 years old and is suffering from MSP TYPE 1(Mucopolysaccharidosis Type 1). it is a rare lysosomal storage disease belonging to the group of mucopolysaccharidoses.
The possible treatment include hematopoietic stem cell transplant
(HSCT)(bone marrow transplant) and enzyme replacement therapy (ERT). Both of these treatments work by replacing the missing IDUA enzyme (alpha-L-iduronidase).
We have all ready started enzyme replacement therapy (ERT) which is very expensive compare to hematopoietic stem cell transplant (HSCT) in the long run. so we urgently need fund so that we can do the transplant as soon as possible before his condition get even worst.
We have already have the bone marrow donor within our family who is own my daughter.
i request you to help me in any way possible.