Our baby Kyndall has been diagnosed with Severe Positional Plagiocephaly and Torticollis. In lame terms, she turns her head to the left and leans her neck to the right. (Torticollis) She also has severe flattening of her skull (Positional Plagiocephaly). We are asking everyone to pray for her and for fast recovery. Kyndall is already receiving Physical Therapy through Early Intervention (State pro...gram) in our home, once and week; as well as, outpatient Physical Therapy every Friday. Now, she needs a helmet (Doc Band)... the base of her skull on the left side is pushed in. The actual bone is growing Inward. They did measurements of both sides of her head... back of the head to ear (left and right), ear to nose (left and right), back of head to eyebrows (left and right) and Kyndall's measurements are WAY off. Everything on the left side of her head is pushed forward. They said that she has a SEVERE case and it will probably take 2 helmets to get her to a mild case. (4 months per helmet) Each helmet costs $3,800. We will have to almost shave her head for the band and we will have to go back for check-ups every 2 weeks. This place is 1 hour and 30 minutes away... one way. I don't know how we are going to do this.
After all of the doctors appointments, specialists appointments, physical therapy appointments, missed time from work, gas, tolls, etc... we are not finally able to purchase the first helmet for Kyndall. The insurance company will not cover the helmet, at this time.
Kyndall is currently 8 months old and we have to act now.