Medical Assistance for Lola Ising, Froilan, Elmer – Muscular Dystrophy

Update posted by Aieen Marie Salonga On Feb 27, 2018

Good news, Tito Elmer is no longer dependent to oxygen support. While he's breathing still needs to be closely monitored, we are glad that he is now able to manage without oxygen support. He is also now able eat soft foods and have shown great improvement.

This afternoon, a procedure was performed to help ease his abdominal pains caused by his difficulties in urinating. Looking forward to be discharged soon.

To everyone who have helped us, our prayer warriors, thank you from the bottom of our hearts.

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For with God nothing shall be impossible. -Luke 1:37

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Update posted by Aieen Marie Salonga On Feb 25, 2018

Tito Froilan - 51 yrs old have been showing symptoms of Oculophraryngeal Muscular Dystrophy - https://rarediseases.org/rare-diseases/oculopharyn....

He does have impaired articulation of speech, difficulty in chewing and swallowing, unable to close his eyelids and have shown signs of visual loss. He can no longer support himself to sit on his wheelchair, now being supported with seat belts.

Currently he is dependent to Systane Ultra, to ease soreness of his eyes due to inability to close his eyelids.

Systane Ultra - Php 410.00/10ml

He is also using adult diapers 24/7.

If funds were available we would like to have him checked by a specialist for us to be able to give him appropriate care.


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Update posted by Aieen Marie Salonga On Feb 25, 2018


Feb 23, 2018, Tito Elmer was rushed to emergency room of Dr. Yanga Hospital due to shortness of breath and abdominal pain. After series of tests, he is diagnosed to have pneumonia. He is also very weak due to lack of nutrients. As of today, he is still admitted to the hospital.

He is currently supported by oxygen to ease his shortness of breath. Catherization is also performed to aid his urination.

Due to his age - 39, he is already experiencing signs of Oculopharyngeal Muscular Dystrophy - a rare genetic muscle disorder that appear between 40 and 60 years of age. Affected individuals may develop drooping of the eyelids(ptosis), trouble moving their eyes and/or difficulty of swallowing(dysphagia). Doctor advised that his difficulty of swallowing may become severe enough, they can lead to the indigestion of food or liquids into the lungs, which can cause inflammation or infection of the lungs that can lead to death. It is advised to perform nasogastric intubation, to feed him.

For now, it is prescribed to take Combiflex, each bag will lasts 36 hrs and provide him nutrients he needs to regain strength. Combiflex costs 5,488 pesos per bag.

Combiflex 1400KCal

We are uncertain of how long will he need to take Combiflex for him to fully regain strength.

Praying for his fast recovery.

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Anonymous

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Thank you everyone for all your help and prayers for us. We are truly grateful! 💕 God bless us all.

Aivery Rose Salonga

Posted On Feb 27, 2018

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M DC

Backed with ₱8000.00 On Feb 26, 2018

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Rose Ann Torrizo

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Anonymous

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Anonymous

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Thank you Mark, God bless.

Aieen Marie Salonga

Posted On Feb 25, 2018

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Mark Bugnot

Backed with ₱850.00 On Feb 25, 2018

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