HELP NEEDED FOR CROMWELL: Medical needs and funds for his DBS Operation

  • US$955.00
    raised of $49,000.00 goal goal
1% Funded
11 Donors
Help this ongoing fundraising campaign by making a donation and spreading the word.
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Hi everyone! My name is Cathee, Crom's sister and my family the Hizon's, are setting up this GogetFunding page for my brother who's suffering from X-Linked Dystonia-Parkinsonism (LUBAG or GENERALIZED DYSTONIA) for almost 3 years now. This is progressive wherein the neurons in a specific part of his brain are dying, causing tremors, muscle rigidity, slowness of movement, gait, and difficulty swallowing, among other things...

Your kind donations will go to help him for his daily needs such as medications , food , diaper etc.... He will be getting a consultation for a. Surgery which is Deep Brain Stimulation Operation which is currently at 2,272,417.56 Philippine Pesos (roughly 49k USD, but prices may still vary and we are hoping we could avail of the treatment before prices hike). We are trying to get support in any way to better his quality of life. We are hoping for everyone's support in making this possible. Once we have the final answer from the gorup of doctors we will give an update. The Hizon Family are very hopeful & thankful for any help we can get to help Cromwell regain some functions & can be a father, husband. Hope anyone who can, will donate to help my brother and make his life back to normal again.

Here is my Brother, Cromwell Hizon's story.

Cromwell Hizon, 43 yrs grew up in Sampaloc Manila, living with his partner and one child age 11. He is a very tough, brave, gregarious and helpful man. He worked as a Computer Staff in an internet cafe for almost 8 years. On Mid May of 2014, age 40, he encountered painful abdominal and right leg cramps. A week later, his both eyes twitched and noticed that there's something really going on. We went first to an EENT Doctor and then referred to a Neurologist. Different laboratory tests, (Blood, Lead, EEG) and some radiological test were done. June 2014, he was diagnosed to have a Dystonia. No clue yet what is it about so we had a closure meeting with the Doctors and explained to us everything about it. Cromwell started depression when we heard that there is no cure although there are treatments which can help to alleviate symptoms. Tried Botox (Botulinum) , last Nov 2014 and August 2015 and somewhat alleviate some of the pain but due to lack of funds he was not able to keep taking the medication.

All of the advice given to us, we follow in order but we need to be prepared for the worst because of this unpredictable disorder. My brother is unable to perform basic activities of daily living. Cromwell started oral medication since June to present. However this has no cure, and the treatment we believe has the best hope of at least slowing the progression of this disease and ---is very expensive--. So we are left with this option; humbling ourselves before our friends and family, their friends and family, and hopefully friends of friends to ask for help.

We are raising these funds to be able to provide my brother with the care he needs, that a loving man/brother deserves.

The funds will be used for his treatment (DBS), medications and home care costs. I want nothing more than to be able to care for my brother who has given me and those around him so much in this life.

WE CANNOT THANK YOU ENOUGH FOR YOUR DONATION.

And finally, please share this campaign through social network and email with a personal messages from you to your network (your family, your friendS, and friends of friend) asking them to read it, consider contributing, and sharing as well. That is the only way this campaign will be successful.

Thank you for your love, your support, and the gift of your help.

Thank you,

The HIzon Family

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More about Dystonia

What is Dystonia?

Dystonia is a neurological condition characterised by involuntary and sustained muscle spasms which can force affected parts of the body into abnormal movements or postures. Dystonia is an umbrella term covering a number of conditions. In most cases, it affects the motor pathways in the brain that controlrecruitment and movement of muscles causing them to perform an action that leads to unwanted spasms.Impact Due to lack of program that addresses the health and medical care for people with Dystonia, many patients suffer and worse, even die for lack of proper treatment. At present there is no cure, although there are treatments which can help to alleviate symptoms.

Fundraising Team

I'm the sister of Cromwell

I'm the sister of Cromwell

  • Anne Mc Nulty
  •  
  • CAMPAIGN MANAGER
  • Ara Tobias
  •  
  • Funds Captain

Donors

  • Nikkole mcnulty
  • Donated on Oct 29, 2016
Amount Hidden
  • Cathee Tecson
  • Posted On Oct 23, 2016
  • Thank you very much Ms. Caroline. May God Bless you more!

  • Caroline Azarraga
  • Donated on Oct 22, 2016
  • Prayers and blessings for you and your family.

$100.00

No updates for this campaign just yet

Donors & Comments

11 donors
  • Nikkole mcnulty
  • Donated on Oct 29, 2016
Amount Hidden
  • Cathee Tecson
  • Posted On Oct 23, 2016
  • Thank you very much Ms. Caroline. May God Bless you more!

  • Caroline Azarraga
  • Donated on Oct 22, 2016
  • Prayers and blessings for you and your family.

$100.00
  • Ara Tobias
  • Posted On Oct 15, 2016
  • Thank you Glenda for your support

  • Glenda M
  • Donated on Oct 15, 2016
Amount Hidden
  • Cathee Tecson
  • Posted On Oct 14, 2016
  • Thank you very much sir francis

  • Anonymous
  • Donated on Oct 13, 2016
  • Get well soon. Prayers! 🙏

Amount Hidden
  • Cathee Tecson
  • Posted On Oct 09, 2016
  • Thank you very much Nana and Adem

  • Anonymous
  • Donated on Oct 08, 2016
$200.00
  • Cathee Tecson
  • Posted On Oct 08, 2016
  • Bong and Marla.. Thank you very much for the support. A great help for kuya crom.

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Followers

10 followers
Vinestrut Strut
mary ann roxas
Adem Hizon
Friend :) :)
Marla&Ben Catbagan
Anne Mc nulty
Shiela Habibi
Rain & Roize Gelangre
Ara Tobias
Cathee Tecson
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US$955.00
raised of $49,000.00 goal
1% Funded
11 Donors

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