Christian has had a severe form of seizures since he was 3 months old, he's now 8yrs old. As the yrs have gone by, he has developed other issues such as a swollowing problem, which led to a feeding tube in 2012, chorea, which is a movement disorder, dystonia, cortical visual disorder that makes him legally blind, and global developmental delays.
When Christian was younger his development was slightly behind other kids his age but as time goes by he loses skills. We have had every genetic test and mitochondrial test available but we still don't have have a diagnosis. He is currently involved in a research study that is diagnosing children like him at a 40% success rate.
Christian has been through more than a any little boy should have to go through. Our family includes him in everything we do so the thought of not being able to continue to bring him with us is heartbreaking! Our dream is to get him a wheelchair accessable van and your support would be appreciated more than we could ever express!!!!
Please come check out Christian's Journey on Facebook to follow this amazingly strong and courageous little boy.