Chris Myeza Brain Surgery Fund

Update posted by Allison Myeza On Jul 26, 2017

We managed to raise enough for Chris to be admitted for his awake brain surgery! As i write, he is in the operating theatre at Entabeni Hospital in Durban, and his team (the neurosurgeon, anaesthetist and OMI brain mapping specialist are hard at work. I will post an update when Chris is out of surgery. We still need funds to cover to full costs, so please make a donation if you are able to support Chris. Heartfelt thanks to you all who have supported in different ways. Allison

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Update posted by Allison Myeza On Jul 12, 2017

The second picture linked to this campaign is the donation my grandson Keegan made. Somehow, I don't think the hospital will accept it, but we were very thankful - as they say, it is the thought that counts!

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Update posted by Allison Myeza On Jul 11, 2017

Hi everyone, a quick note to thank each and every one of you who have shown an interest and supported our campaign to raise funds for Chris's surgery. The words thank you do not fully express what we feel.

Our fantastic friends and family have been busy with a whole range of fundraising activities, including a stand at the local farmers' market at Shongweni, raffles, games and fun for the kids and a car boot sale in the pipeline. Last Saturday at the market, the team raised nearly R3000/$250, and the stand will be up for the next two Saturdays.. My grandson Keegan was part of the fundraising at the market, and when he got home, he found the monopoly box and made his own "donation" - it was so sweet.

Chris spent a week with long-time friends in Johannesburg last week - a short holiday before his surgery, which he really enjoyed. While he was there, he went to see his elderly aunt Lindi Myeza in Soweto, who is housebound. Aunt Lindi was overjoyed to spend time with her grandnephew and Chris plans to return for a visit later in the year,, when he has recovered.

The surgeon called this morning to confirm all of the arrangements - two weeks to go and counting!

Again, please accept our appreciation for your donations, blessings and support.

With best wishes,

Allison

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Update posted by Allison Myeza On Jul 02, 2017

A friend suggested that I include a bit more information about Chris’s cavernoma – the “what, why and how” – so please read on if you wish.

A cavernoma is a collection of abnormal blood vessels through which bloods flows slowly. Most commonly found in the brain, cavernomas grow over time and may cause epilepsy, brain haemorrhage and progressive disability.

Chris’s cavernoma was diagnosed in 2016, although it can be seen on MRI scans from 2013 (when Chris started to have seizures). The cavernoma is located in an “eloquent” area of the brain, in the frontal lobe - the area which controls emotion, personality and impulse control, and is located on the “motor strip.” Because of this, Chris struggles with anger management, aggression and self-control, which affects his social and family life.

Chris has experienced two recent haemorrhages – in March and April. Following the haemorrhage in April, Chris experienced stroke-like symptoms, including loss of function on his right side (face, hand, arm and leg), which affected his speech and ability to do tasks like tie his shoes and button clothes. Chris has remained incredibly positive and has regained his ability to manage everyday functions, although his speech is still slurred.

The best prognosis for Chris is to have the cavernoma surgically removed – to prevent more haemorrhages and to remove the pressure on his frontal lobe (the cavernoma has grown 1.5 cm in the past year). While the surgery is risky in terms of potential damage to the “motor strip,” it is urgent to prevent future loss of function. Chris has been a patient at South African government hospitals since birth and has received excellent care, but there are simply too many patients and too few specialists and resources in the state system. The likelihood is that he would receive an operation in 2019 (or later)…. A neurosurgeon at the hospital where Chris recently spent two weeks agreed that the best way to expedite treatment for Chris is to explore options within the private sector.

The operation to remove the cavernoma is possible using “awake brain” surgery with brain mapping: during the operation, the patient is woken from the anaesthetic and asked to talk and perform tasks such as counting and moving different areas of the body. The motor strip is mapped and marked by a neurophysiologist in this way before the cavernoma is removed, so that extreme care may be taken to avoid damage to the motor strip.

We have arranged the surgery to be done by Dr Malan Roux who is experienced in “awake brain” surgery. Following a successful removal of the cavernoma, the threat of bleeding and damage to Chris’s frontal lobe will be removed, along with the pressure on this sensitive area – Chris may regain “himself” and his seizures may taper off or stop.

Having weighed all the possibilities, we have taken a leap of faith and scheduled the surgery, confident that we will be able to raise the funds needed to bring this miracle into Chris’s life. Please join us in this “miracle-in-the-making.”

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Best of luck to Chris with the surgery. With love, Alex, Melissa, and family

Alex Herder

Backed with $200.00 On Jul 21, 2017

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Anonymous

Backed On Jul 19, 2017 Amount Hidden

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Anonymous

Backed On Jul 16, 2017 Amount Hidden

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Our raffle went very well yesterday. We raised R3000 towards Chris’s brain surgery !!! We are supee proud of Khethiwe, Lauren and Jayme for all their hard work and determination. We will be running the raffle for another two weekends before we announce the lucky winner ❤❤❤

Sally Ackermann

Posted On Jul 09, 2017

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God's blessings on this journey. Praying for many more donations and that Chris will be healed xo

Heather Lombard

Backed with $200.00 On Jul 08, 2017

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Thank you everyone for your kind donations so far. Tomorrow is a busy day for everyone at our local Farmers Market where we will be raffling a weekend away at The National Heritage Nature Park in the Berg. Holding thumbs that it goes well 😚😚

Sally Ackermann

Posted On Jul 07, 2017

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i hope you get the operation you so need. good luck and keep fighting,

trisha jones

Backed with $30.00 On Jul 07, 2017

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Cheryl Orsmond

Backed with $20.00 On Jul 05, 2017

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Debbie Liebenberg

Backed with $15.00 On Jul 05, 2017

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Anonymous

Backed with $150.00 On Jul 02, 2017

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Allison Myeza

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