Medical Costs for CHI babies in the Philippines
Fundraising campaign by
Geraldine Ceb
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US$0.00raised of $2,000.00 goal goal
Hi everyone!
I am knocking in your kind hearts to help support babies born with Congenital Hyperinsulinism (CHI) here in the Philippines.
Congenital Hyperinsulinism is a rare disease. In other countries, it occurs in 1 in every 50,000 births. This causes severe and persistent hypoglycemia which causes brain damage or worse comatose, even death. There are only 4 cases currently here in the Philippines that I know of, my daughter being the oldest surviving at almost 11 years old.
In the Philippines, health and medical care is expensive, getting support is difficult. Having a baby in this country with CHI is a struggle, most of them do not survive. The ultimate goal is to aggressively prevent or control hypoglycemia to prevent seizures from occurring, this is a daily battle. Their blood sugars are frequently monitored and they need to be given glucose or carbohydrates through feeding 24/7.
The CHI babies need your help support their medical needs. This funding will be used to purchase medicines such as diazoxide tablets, supplies (like gastrostomy or feeding tubes, strips for glucometers) and glucose tablets or gels to help manage hypoglycemia. Most of the medicines and supplies they need can only be purchased outside of the country. It is very expensive and they need plenty of these supplies to be able to really survive.
This is for the babies and parents of babies with CHI here in the Philippines. The babies are fighting to survive daily even through several seizures a day; during days when they are ill or during days when there are no supplies. If you can only see these little angels, they really fight to survive. Let us please give them a chance, to help and support, to make the battle a bit easier to face, to give them a few more weeks or months not worrying where to get funds for medicines and supplies and instead have strength and to concentrate and care for their little angels.
THANK YOU!
God bless you all.
(This page is created to help pay for medicines like Diazoxide, feeding tubes, glucometer strips, karo syrup, glucose tablets and gels. All funds and cash will be given to the CHI parents especially parents of Summer & Keisha Faith, also Ness Gabrielle, my daughter is not included since we get enough support from family & relatives.)
EDIT:
Hi guys! This is my first time to create something like this because I really want to help the other parents and CHI babies. I have created a page for us, a group chat to bring us mommies and parents together, and this funding page for support, communication, and awareness.
We do not have a business paypal account which is required in order to receive donations thru debit or credit card for those who do not have paypal accounts.
You can contact our page in case https://www.facebook.com/CHIphilippines/
or send me a call or text through +639154850980 and look for Gem
I can also give you the CHI parents' contact information if you want to help them directly.
Also you cans send it thru BPI account 9339-072-18
Organizer
- Geraldine Ceb
- CDO, PH
Bank accounts and contacts
Update posted by Geraldine Ceb at 07:31 amHi guys! This is Gema, Chelsea's mom. This is my first time to create something like this because I really want to help the other parents and CHI babies. I have created a page for us, a group chat to bring us mommies nad parents together, and this funding page. . . . .
Kylie Summer Ferrer
Update posted by Geraldine Ceb at 06:58 amKylie summer j. Ferrer Born: April 22,2014, twin to a baby boy named Kyler Rain (who did not survive after 8 days due to late diagnosis and they did not know yet it was CHI)Fist 5 months of life diagnosis was Seizure Disorder or epilepsy. Was prescribed phenobarbital & depakene. . . . .
Keisha Faith
Update posted by Geraldine Ceb at 05:21 amKeisha Faith AgapayShe is the latest and youngest CHI currently fighting to survive today.Here is her story and detailsBorn on November 28, 2016 at Sta. Cruz Medical Center via emergency Cs. Now almost 5 months old Newborn Diagnosis : neonatal sepsis, aspiration Pneumonia 2 months: Noticed to have seizures due