Medical Costs for CHI babies in the Philippines

Update posted by Geraldine Ceb On Apr 21, 2017

Hi guys! This is Gema, Chelsea's mom. This is my first time to create something like this because I really want to help the other parents and CHI babies. I have created a page for us, a group chat to bring us mommies nad parents together, and this funding page for support, communication, and awareness.

We do not have a business paypal account which is required in order to receive donations thru debit or credit card for those who do not have paypal accounts.

You can contact our page in case https://www.facebook.com/CHIphilippines/

or send me a call or text through +639154850980 and look for Gem

I can also give you the CHI parents' contact information if you want to help them directly.

Also you cans send it thru BPI account 9339-072-18

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Update posted by Geraldine Ceb On Apr 21, 2017

Kylie summer j. Ferrer

Born: April 22,2014, twin to a baby boy named Kyler Rain (who did not survive after 8 days due to late diagnosis and they did not know yet it was CHI)

Fist 5 months of life diagnosis was Seizure Disorder or epilepsy. Was prescribed phenobarbital & depakene but She was still having seizures 4-8x a day, weak, lethargic and somtimes unresponsive.

Was transferred to another hospital and diagnosed with Metabolic Disorder until finally she was diagnosed with CHI by a doctor who recognized the symptoms.

She will be turning 3 years old this April 22, she still cannot walk or talk because of the late diagnosis and persistent hypoglycemia she has severe global delays. Her parents cannot afford her medicines and needs most of the time as well as therapy to help Summer cope with her severe developmental delays.

Sometimes her seizures lasts as long as 30 minutes and happens a few time per week. Her only management to raise her blood sugars is by giving her drinks high in sugar like milk with 2 tablespoons of Karo syrup.

Currently the dark Karo syrup is difficult to find in the grocery stores. Summer sometimes uses glucotabs bought from outside the country by relatives and friends, but the supply is inconsistent and often not enough.


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Update posted by Geraldine Ceb On Apr 21, 2017

Keisha Faith Agapay

She is the latest and youngest CHI currently fighting to survive today.

Here is her story and details

Born on November 28, 2016 at Sta. Cruz Medical Center via emergency Cs.

Now almost 5 months old

Newborn Diagnosis : neonatal sepsis, aspiration Pneumonia

2 months: Noticed to have seizures due to Hypoglycemia

They thought she was only having congestions.

Transfer to Batangas Medical Center and was given final diagnosis: Congenital Hyperinsulinism

https://www.facebook.com/ghilyn.bhaby/posts/1272877209475625





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Geraldine Ceb

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