My name is Jenn and I have Chiari Malformation. It is a rare brain condition, where part of the cerebellum sits outside the skull & down into the spinal cord. There is NO CURE.. Surgery is the only treatment options. Symptoms include extreme pressure headaches, dizziness, vertigo, back pain, muscle weakness, numbness & tingling, and many more. Many children, and adults alike, suffer from it yet are misdiagnosed and not getting the proper treatment
The newly founded Canadian Chiari Association is hosting walks across Canada on Sept 7th. We are raising awareness and fundraising to support those with Chiari in any way possible. ALL PROCEEDS GO TOWARDS PATIENT ASSISTANCE, EDUCATION & AWARENESS! All board members are volunteers so there is no administration fees, etc.
The CN Tower in Toronto, Niagara Falls, Ottawa City Hall Heritage building, and the 100 yr old Langevin Bridge in Calgary will be lit in purple that evening.
Any donations over $15 will be provided with a tax receipt. Thank you for your time and generosity. Thank you for making Canada a better place for Chiari sufferers.
Please email [email protected].ca should you have any questions.