Charlie’s Challenge
Fundraising campaign by
CharliesChallenge
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£3,893.00raised of £5,500.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Charlie is a very happy, bright and gregarious 3 year old child but his CP means he is unable to walk unaided. Undeterred, he uses a Pacer walker and braces on his feet and ankles to help him get around independently.
Costs for private multi-disciplinary assessments and treatments like the BoBarth centre can be as much as £4000 for a week block! Assessments of gait using video technology can be up to £1000 per report. As we now only get 1 NHS physiotherapy session every 2 months hopefully you can understand that we would like to raise funds to help Charlie as best we can... UPDATE- due to resolving staff issues we are now getting an NHS session every other week- something that improved as a result of this campaign?
Charlie was born prematurely after a very difficult pregnancy, he tried to arrive at 30 weeks gestation but his mum held on until 35 weeks. As a result, he suffered brain damage called Peri-Ventricular Leukomylasia (PVL) and subsequently spastic diplegic Cerebral Palsy (CP). He was 4lbs when he arrived on 3.11.2011. We were able to bring him home 10 days later on the 13.11.2011- our 1st wedding anniversary!
Charlie has already undergone a number of procedures including a MRI under anaesthetic, a bilateral recession (eye surgery) and Botox under GA in his spastic legs.
Spasticity is Charlie's big problem- a bit like constant cramp it pulls and tightens his muscles making them unable to relax, it can be painful and is very tiring. He undergoes rigorous daily physiotherapy (which we have to perform) and has to take medication to help control his spasticity. He copes remarkably with all his treatments and this is testament to his character and spirit.
Unfortunately, Charlie isn't suitable for surgery like SDR (selective dorzal rhizoplasty) at present as he is not strong enough or have good enough balance. This may change in the future but at the moment the best we can hope to provide is as much physiotherapy as we can to help develop his strength and conditioning.
Both my wife (a Police Officer) and myself (an NHS Paediatric Audiologist) want to provide the best for our son to achieve his potential and help him gain his independence; to do this we need to raise funds and we hope that this is where you could help. We are hard working public servants and yet we can only do so much. NHS provision is only quite basic and as the private physiotherapy, pacers, adaptive car seating, pushchairs, disability bikes all cost so much we wonder if you could be so good as to contribute to our fundraising? Big or small, any assistance you could give would help a small boy grow into the man we know he can become.
We are planning, runs, bike rides, auctions and more. Please see facebook and www.charlies-dad.org (a blog about being the parent of a disabled child) for details
Organizer
- CharliesChallenge
Donors
- Mary Robertson
- Donated on Aug 29, 2015
- Ayla Ozkan
- Donated on Aug 21, 2015
Where we are...
Update posted by CharliesChallenge at 03:13 pmSome little bits of Charlie's Challenge... Hers 'N' Sirs did their 24hr Haircut-Athon and raised �2.5K! Verity-Jayne May, Lauren Bennett and Annie Wozencroft started at 9am on Sat 9th and cut all the way through till 9am Sunday! They also did a raffle supported by lots of Messingham business', especially. . . . .
Charlie's Challenges
Update posted by CharliesChallenge at 03:53 pmA big thank you to everyone who has donated and another huge cheers to those that have offered themselves up for sponsered events! So far Charlie has (without naming individuals): 1 Entrant into the Austrian Triathlon 3 North Lincs Half Marathon Runners (including a Pacer!) 1 Manchester 10k Runner 1. . . . .
Anat Baniel Method (ABM)
Update posted by CharliesChallenge at 02:51 pmDue to the help that Charlie has been given he has been able to try some different therapies to help him. One therapy is ABM which is a very child led movement therapy designed to help 'open up the brain to learning'. To all intent and purpose it helps the. . . . .
ForBrain
Update posted by CharliesChallenge at 11:37 amAs an Audiologist I know and understand the importance of sensory processing in a developing brain, let alone a damaged one. Today we have purchased a ForBrain audio-vocal feedback device. Using neuro-plastic (brain-change) principles it can use auditory stimulus to help 'calm' a 'noisy brain'. The simple idea is that. . . . .
Charlie's Dad
Update posted by CharliesChallenge at 02:42 pmIn an effort to pay back some of your support I am writing a blog describing our journey and the emotions we've been through along the way. Although it is a bit of a theraputic 'letting off steam' I have tried to write it in such a way that others
Junkmail
Update posted by CharliesChallenge at 04:37 pmTo all those that have donated... Please check your junkmail- everyone who donates gets a thank you but we've heard that it might go into your junk folder! Please don't think we aren't thanking people- we literally stuggle to catch our breath with astonishment each time someone donates. We have
Sponsorship Forms
Update posted by CharliesChallenge at 04:34 pmSome people have expressed an interest in doing various events in aid of Charlie's Challenge, as such we have put some sponsorship forms together. If you would like to do a sponsored bike ride, run, skydive (i plan too- eek!) or anything else please email [email protected] and we can send you
Overwhelming Support
Update posted by CharliesChallenge at 09:19 amThank you everyone that have donated to Charlie's Challenge. As promised the funds would be used to try novel and alternative therapy not available on the NHS. We can try one already! The first we can try (and will review on www.charlies-dad.org) will be ABM- Anat Baniel Method. It is
Mission
Update posted by CharliesChallenge at 02:42 pmWe would love to be able to try every therapy or do every procedure to help Charlie walk but simply most private sessions are prohibitivly expensive. We aim to use any funding to try differing therapies to help Charlie as best we can. I am planning to launch a blog to. . . . .
Donors & Comments
- John Lynskey
- Donated on Aug 30, 2015
Glad to help
- Mary Robertson
- Donated on Aug 29, 2015
- Ayla Ozkan
- Donated on Aug 21, 2015
- Guest
- Donated on Aug 19, 2015
- Guest
- Donated on Aug 12, 2015
- Guest
- Donated on Aug 11, 2015
- Guest
- Donated on Aug 10, 2015
- Guest
- Donated on Aug 09, 2015
- Greg Kovacs
- Donated on Aug 07, 2015
- Bethan Kempthorne
- Donated on Aug 06, 2015
Glad to help