US$11,547raised of $50,000.00 goal goal
"R5million - how much it costs for life saving medicine per year. (called Trikafta).. BUT $50 000 buys my daughter 1 years worth of the generic medication that will keep her alive.
Until big pharma develop a conscience and choose lives over profit- the only way Kayla has a future, is through the sheer kindness of strangers who are able to give her more tomorrows by donating. I thank God for each and everyone of you".
Kayla was diagnosed with cystic fibrosis when she was only 6 weeks old. Cystic fibrosis (CF) is a terminal genetic illness that effects every organ in the body. The majority of CFers pass away in their 20's. and 30's. Currently at just 9 years old - Kayla has had pneumonia 17 times, several major operations as well as numerous complications. She has spent most of her life in hospital.
Her medical team have just discovered that not only does she have a collapsed left main bronchial tube - but her trachea has now also collapsed. Breathing is hard enough with cystic fibrosis - so this new discovery is absolutely heartbreaking. Imagine trying to water your garden with sticky, gunky glue through a hosepipe. Now add multiple kinks in the hose pipe.
Surgeons will need to meet with her lung transplant surgeons to see if surgery is even possible as it may compromise her chances of receiving a double lung transplant.
I have no choice but to put everything aside and do what ever I can to raise funds in order to get Kayla this life saving medication - Trikafta. The problem is that it costs millions every year. (Please feel free to research and look up the cost)
The generic currently costs approx $3500 per month. Add medical insurance, costs and the fact that I'm a single mom and cannot earn an income while we are stuck in hospital... For weeks and sometimgsIt's beyond terrifying. I just want to keep my little girl alive. If you are in a position to help us in anyway in this fight - even if it's just sharing her fundraiser - every little bit counts. I would be eternally blessed and grateful!
The total amount raised ($50 000) includes the percentage of each donation that goes to the fund raising site. It also includes bank fees, taxes and transporting Kayla's miracle medication to South Africa.
Thank you for taking the time to read about Kayla's journey. She has a Facebook page called 'Caring for Kayla' that I started in 2013 to spread awareness. 4500+ incredible people follow our little warrior princess x
- Kayla Glaser
- Carl Wighard
- Funds Manager
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