Caring for Kayla
Fundraising campaign by
Kayla Glaser
-
US$11,547raised of $50,000.00 goal goal
"R5million - how much it costs for life saving medicine per year. (called Trikafta).. BUT $50 000 buys my daughter 1 years worth of the generic medication that will keep her alive.
Until big pharma develop a conscience and choose lives over profit- the only way Kayla has a future, is through the sheer kindness of strangers who are able to give her more tomorrows by donating. I thank God for each and everyone of you".
Kayla was diagnosed with cystic fibrosis when she was only 6 weeks old. Cystic fibrosis (CF) is a terminal genetic illness that effects every organ in the body. The majority of CFers pass away in their 20's. and 30's. Currently at just 9 years old - Kayla has had pneumonia 17 times, several major operations as well as numerous complications. She has spent most of her life in hospital.
Her medical team have just discovered that not only does she have a collapsed left main bronchial tube - but her trachea has now also collapsed. Breathing is hard enough with cystic fibrosis - so this new discovery is absolutely heartbreaking. Imagine trying to water your garden with sticky, gunky glue through a hosepipe. Now add multiple kinks in the hose pipe.
Surgeons will need to meet with her lung transplant surgeons to see if surgery is even possible as it may compromise her chances of receiving a double lung transplant.
I have no choice but to put everything aside and do what ever I can to raise funds in order to get Kayla this life saving medication - Trikafta. The problem is that it costs millions every year. (Please feel free to research and look up the cost)
The generic currently costs approx $3500 per month. Add medical insurance, costs and the fact that I'm a single mom and cannot earn an income while we are stuck in hospital... For weeks and sometimgsIt's beyond terrifying. I just want to keep my little girl alive. If you are in a position to help us in anyway in this fight - even if it's just sharing her fundraiser - every little bit counts. I would be eternally blessed and grateful!
The total amount raised ($50 000) includes the percentage of each donation that goes to the fund raising site. It also includes bank fees, taxes and transporting Kayla's miracle medication to South Africa.
Thank you for taking the time to read about Kayla's journey. She has a Facebook page called 'Caring for Kayla' that I started in 2013 to spread awareness. 4500+ incredible people follow our little warrior princess x
Fundraising Team
- Kayla Glaser
- Carl Wighard
- Funds Manager
Donors
- Anonymous
- Donated on Sep 24, 2022
Keep on fighting beautiful! You've got this!
- Michael Ortlepp
- Donated on Sep 24, 2022
No updates for this campaign just yet
Donors & Comments
- Kim Enslin
- Donated on Oct 02, 2022
Dearest Kayla, With much love and healing Prayer. Xoxoxoxo
- Anonymous
- Donated on Sep 24, 2022
Keep on fighting beautiful! You've got this!
- Michael Ortlepp
- Donated on Sep 24, 2022
- Marien Gasson
- Donated on Sep 22, 2022
Sending love to you Kayla
- Guest
- Donated on Sep 22, 2022
- Ansie Lima
- Donated on Sep 13, 2022
My friends little baby was diagnosed with CF recently. This is very little towards your big pot of funds needed but I truly pray and hope you manage to raise the funds for Kayla 💗
- Anonymous
- Donated on Sep 04, 2022
- Anonymous
- Donated on Sep 02, 2022
We’ve been following Kayla’s progress from the UK, wishing her and her family all of the very best - and I hope that you reach that target soon! Xx
- Anonymous
- Donated on Sep 02, 2022
I am sure you don't always feel brave, but to the world, you are one of the bravest. You are always striving for life, and you do it with the most beautiful smile.
- Vannessa Meiring
- Donated on Sep 02, 2022
Dearest Kayla, With much love and healing Prayer. Xoxoxoxo