Carine Engelbrecht With Vacterl Syndrome

Carine Ewas born with Vacterl syndrome, only one kidney, Benign Oesophageal Stricture, no anus, scoliosis and a hole in her heart.

– VACTERL syndrome is a set of birth defects that often occur together. It is classified as a “non-random association,” rather than a disease. “VATER” is an acronym that refers to five different areas in which a child may have abnormalities: vertebrae, anus, trachea, oesophagus, renal (kidneys).

– Benign Oesophageal Stricture – Benign oesophageal stricture describes a narrowing or tightening of the oesophagus. The oesophagus is the tube that brings food and liquids from your mouth to your stomach. “Benign” means it’s not cancerous.

– Scoliosis is a sideways curvature of the spine that occurs most often during the growth spurt just before puberty. While scoliosis can be caused by conditions such as cerebral palsy and muscular dystrophy, the cause of most scoliosis is unknown.

When she was born they immediately had to take her to surgery to fix her oesophagus, straight after that they had to do a colostomy. When she was 9 months old her small intestine burst.

After that they had to create an anus for her to be able to pass normal stool, although Carine does not have any control over her stomach. She wears nappies up until today. She turned 8 on the 25 March 2020. Her Kidney soon started giving problems and she had to do dialysis from a very early age, for -+6 Year, it looks like a catheter that drains the fluid. February 2017, she had open heart surgery to repair the hole in her heart, surgery went well and she was discharged within 6 days.

Weekend of 10 November 2018, little Carine started looking ill, they took her to a GP and she was put on antibiotics, within 3 days her condition deteriorated. So, on the 16 November 2018 she was admitted into a private hospital, (Kidney Failure). She is on a medical aid, her teacher from school put Little Carine on her medical aid, her parents can`t afford medical aid at this moment in time. She only got weaker and weaker.

She was transferred to Morningside clinic in Sandton where a group of amazing Doctors advised them that they will have to start dialysis immediately, only to discover that the medical aid won`t cover the dialysis due to the fact that she is still on a waiting period. When little Carine woke up she had severed trouble breathing and they took her to ICU, on the 20th of November 2018 at about 02:00am she once again started having trouble breathing, this was when her heart stopped and Doctors had to resuscitate. She sustained brain damage due to this. On 5 December 2018 – They transferred her back to Klerksdorp where they reside only to find out that the Government Hospital don`t have the facilities to cover dialysis for children.

At this moment Corrie and Danie started to ask for donations on Facebook, they raised some funds, the same day she was transferred to Sunningdale where they immediately started dialysis with the money they raised. Money soon ran out and she was transferred to Johannesburg General Hospital on the 10th of December.

They started dialysis but two days later she got infected, they then put her on a Haemodialysis machine. They had to move the port for dialysis a few times as it caused her blood to clot.

On 11 January 2019 – Carine vomited and some of the fluid went back. Her heart rate went down to as low as 34. The next day they did a MRI scan and confirmed that Carine has Cerebral Palsy.

The doctors want to stop her dialysis 30/11/2020, Lets raise funds to send her elsewhere for dialysis.

Let`s raise a HALLELUA for this little girl. Please donate any amount of money.

Thanking you in advance.