My name is Candice Gennitsaris, I am a 35 year old, single mother to a 4-year-old little boy named Quade.
In June 2017, I was diagnosed with Acute Myeloid Leukemia.
I had been sick from the end of March 2017, and kept going to see my Dr, after my third visit I was told I have asthma.
A week later I became worse and was taken to a Homeopath who advised I had Blood or maybe Lead Poisoning. 4 days later I went back to her as I wasn't getting any better, I was deteriorating fast, I was then that she advised that I go to the Hospital.
That night I had very bad pains in my side, I was rushed to the Glynnwood Hospital! within 40 minutes of my arrival, I was Diagnosed with Leukemia! My mother and I were in shock, as my grandmother had died of Leukemia 4 years previous to my Diagnosis. The feeling of fear and confusion was unbearable.
On Saturday morning at 8:00am, The Dr from the ICU at the Glynnwood Hospital, called the Oncologist, who said unless it was for an operation, he would not be coming and would make an appointment to see me the following Tuesday! Due to my condition, I was then rushed to Pretoria East Net Care Hospital.
As I arrived at Pretoria East the Nurses welcomed me and knew me by name, I was sent to the Stem Cell Unit immediately! From there, all tests and Chemo was started immediately.
The Emergency Dr at Glynnwood, and the Dr in the ICU, have my blessing for sending me to Pretoria East Hospital, I believe this was the Best decision made, and I believe this move saved my life!
I have been in and out of hospital for almost a year now, (in 5 to 6 weeks at a time). Living in a room which is 4 x 4m with a bathroom, I sit and stare at the walls driving myself mad, watch TV, try read, but this is not a life for anyone.
Im in Hospital for 5 to 6 weeks at a time, where I am unable see my Son, Quade, I miss him terribly and have no words to describe the emptiness I feel without him! once I am home, I have to stay indoors. I am home for an average of 1 to 2 weeks at a time. When I am at home, all I want to do is hug him and hold him..... love and cuddle him, but I cant touch him as he might infect me. He is four and he needs his Mommy, I am missing his milestones and daily growth. Yes, we do video chats but its just not the same. My son is my life I am missing out on so much of his life.
My Mother (Charlene) and my Brother (Dusty) look after my Son. God Bless them, for being there for my Son and I, in this time of difficulty. They are my support system, my strength! Thank God I have them in my life!
This has been the most dreadful experience of my life.
I was told in January 2018 I was finally OK and in Remission, which was the most wonderful news!
February 2018, I was told, Sorry your Leukemia is back.
I am now in desperate need and waiting for a Bone Marrow donor! My Brother was tested and he is only a 50% match, My mother has been tested but we are still waiting for her results. We have been advised that time is short, and the Doctors cannot afford to wait to find a donor overseas as its taking time.
My Awesome family and friends are busy being tested as well, they are paying their own costs or doing it through Sunflower Foundation, as I do not have the fund to help pay towards their tests as each test costs R3000.00.
In February 2018, I was advised by my medical aid, that I had exhausted my Oncology benefits for the year. I have to pay 20% of all oncology bills, so far I have paid over R 50 000.00 from a personal capacity. My day to day benefits for 2017 were exhausted by the time I saw the homeopath, which meant I had to pay for all out of hospital medication adding to the amount of about +- R15 000.00 thus far.
As you can see my Medical bills are just escalating, Instead of me concentrating on my health, and getting better to reunite with my Son and family, I have so much stress about money and how I am going to pay back my debts from this Life crippling Disease....... on top of everything else happening.
Please hear my cry for help,
God Bless you all, and thank you