I am not too proud to admit that I am super stressed out some days. I am just now getting back on financial track. I have medical debt from the copious amounts of surgeries. It feels like my diagnosis changes every six months or so. It went from auto immune disorder, to undetermined cause cancerous tumor, to cancer clusters, to NET cancer, to heart issues, to now finding out that my family carries the very random and rare Fredrickson’s disease. The testing process for it isn’t easy. I am fortunate enough that my doctor is amazing and understanding. He has been my biggest advocate for getting me the care and tests that I need. It hasn’t been cheap. But my quality of life has dramatically improved since being under his care.
For months at a time my treatment made it impossible for me to do the jobs I was doing before I got sick. I am also extremely fortunate to have had two very understanding managers that have done their very best to accommodate me whenever they can. In fact, since my health has been improving and my short-circuiting heart is more under control, I will actually be going back to work for one of them later this month. But that doesn’t magically remedy all of the financial stress that COVID has caused.
My husband is transgender. He was saving money before COVID in order to have his top surgery done. Most of that money had to be used to just survive. Either that or it has gone towards the legal battle for him to gain legal rights to his daughter. All of which are vastly important things to our lives. We have not seen Emery since the day before my birthday (September 24th). And it is an absence that neither one of us have taken lightly. Our court date is not until January 21st of 2021. In order to see her sooner we need to come up with even more money to pay an attorney to do an urgency filing and urge the courts to move our hearing up.
Neither one of us enjoys being in this position, we are both people who have been prideful in the fact that we (for the most part) have been independent for a long time. We don’t enjoy asking for help. But between my ongoing medical needs, the effect his dysphoria has on his mental health, and the fight to get his daughter back, we had to put our pride on the back burner. These things are just too important to us to let our pride stand in the way.
We waited to talk about this publicly. Partly because we know COVID hasn’t been easy for most people. And partly because we feared for our safety. We pass as a CIS couple. Despite me being intersex and Nash being Trans. And with the political state of things, our status as anything other than the CIS couple that we were perceived as was dangerous information to put out there. But that is a risk we just have to take at this point. Because its who we are.
Anything helps, we have an etsy and we are also taking commissions in other art forms as well.