ERYTHROMELALGIA WARRIORS FUNDRAISER 2022

Dear members, followers, friends, loved ones,

Our usual fundraisers and fundraising activities the last 2 years have been low key due to Covid-19 and, as such, we are struggling to keep our invaluable organisation going .

This year we have additional costs : the restructuring our website as a research hub, the printing of our new erythromelalgia brochure and more EM-related fact sheets (SFN , facial, genital, weight loss, sexual relationships etc.) as well as the updating, printing and continued free distribution of our eye-catching, highly informative erythromelalgia leaflets .

Our erythromelalgia leaflets are provided free of charge to sufferers, loved ones , students, and medical professionals worldwide and distributed as part of our very successful Global EM Awareness Campaign. We also supply EM materials to schools, colleges, and universities in our Education Project. Covid-19 may be preventing fundraising events but our organisation still managed to distribute nearly 15,000 erythromelalgia leaflets in 12 countries, which was no easy feat!. Website hosting , research subscriptions, postage, stationary , support calls , resources and other miscellaneous costs also need financing.

Here are just a few of our services and resources you might not know about : free solutions focused support and information, an extensive research library ( we subscribe to multiple journals) , a large global doctor's database - updated monthly, access to a vast range of up-to-date highly educational EM-related topics, polls , facts , confidential email service, support calls , and Q/A service with experts . More importantly, our organisation offers understanding, compassion, solidarity, and friendship .

We impart knowledge across multiple online platforms as well as offline outreach services and empower those touched by erythromelalgia by facilitating the tools for self -advocacy. We guide those living with EM through the diagnostic process and work-up. We educate on how best to manage symptoms and flares, we recommend tests , treatment options, the best drug protocols , and keep you informed regarding clinical trials . We help members prepare for their consultations and even offer a one-to-one personal email service to discuss and answer questions. We provide tips and strategies on how to manage erythromelalgia - covering lifestyle changes, how to minimise triggers , optimal cooling strategies and we inform members about concurrent conditions and common comorbidity in erythromelalgia patients. We even give support calls! .

Our organisation also runs exciting online events and activities in our communities where members can interact and win fabulous freebies.

We know exactly how it is to live with erythromelalgia as all our amazing volunteers have erythromelalgia too. Some of the team have localised EM, others widespread; some volunteers are mobile whilst others are sadly bed or wheelchair bound - but they all share the same passion. They all strive daily to provide every single member , parent, child, medical professional and loved one with an amazing service . We desperately want to keep those services free! We do not charge memberships or hassle for donations throughout the year ; in fact, we hate asking you for money but we just cannot continue without funds!

HOW TO DONATE

Our Go Get Funding page accepts donations via PayPal and Cards. The currency states USD but you can change the currency just by clicking the little arrow > next to the USD text Donations can also be made directly to our PayPal Make a donation to The Erythromelalgia Warriors or via our secure website http://erythromelalgiawarriors.ning.com/giving-back.

If you choose to donate directly, please ensure that you put the reference: Fundraiser 2022

Please contribute what you can afford . We know times are hard at the moment but donations, however small, add up and allow us to achieve amazing things.

You can donate in any currency you wish (just Google the day's exchange rate).

Remember, it is only through continued global awareness and education that we can hope to bring about change. It is only with your donations and support that we can hope to raise the funds necessary to continue our mission towards achieving this.