Recovery Fund for Reinnite Madrid
Fundraising campaign by
Reissite Madrid
-
₱130,840Donated So Far
The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate
Campaign Story
My twin brother, Reinnite, was diagnosed with PNH (paroxysmal nocturnal hemoglobinuria), March of 2018. It is a rare bone marrow disease wherein his red blood cells are routinely destroyed. He has been in and out of the hospital for blood transfusions to make up for lost red blood cells and platelets since June of 2018. After some lengthy process, he was given compassionate use of Soliris, December 2018. It is a miracle drug for this disease. However, results have not been encouraging. His red blood cells and platelets continue to deteriorate prior to each scheduled infusion of the drug. The only course left is to undergo bone marrow transplant.
I have donated my stem cells to jump start his bone marrow.
With the help of family, we are able to raise for the procedure. However, it has drained our family with resources. Nevertheless, we're glad for your help!
Moreover, he has stopped working and his recovery period may last six months. He is currently a professor in De La Salle University, working for the Decisions Sciences and Innovation Department and is on leave.
Your donation will help him get back to his feet and offset expenses while recovering. We appeal to your compassionate hearts. And we are grateful for all your prayers and support. 🙂 You may send via bank deposit BPI (0473052741; Reissite Madrid) or GCash; (0915-9881093). 🙂
Organizer
- Reissite Madrid
- Campaign Owner
Donors
- Reissite Madrid
- Posted On Jan 10, 2020
P1010 from Marie Joy R
- Reissite Madrid
- Posted On Jan 08, 2020
P2000 from Ricky Lacson
Happy Two Months!
Update posted by Reissite Madrid at 05:56 amHappy Two Months!Celebrating 70 days of recovery. We continue to thank God for this gift of healing. A gift of a new life. We pray for other people who are in need of healing today and all the days. #healing #roadtorecovery #goals2020
Day 50
Update posted by Reissite Madrid at 05:41 pmDay 50 today :) My twin brother is halfway with his isolation! He wants to say thank you to all who supported through prayers, donations, and who shared our GoGetFunding page. Please continue to support with your prayers and donations. He is getting stronger everyday. We can’t wait to see
Happy New Year!
Update posted by Reissite Madrid at 02:21 pmThe Rens, as they are called because of their similar nicknames, celebrate the New Year with their masks on. Just a precaution for the expected fireworks. They wish everyone a Happy New Year! They pray that 2020, will be a year of miracles, healing, opportunities, and breakthroughs for you and
Last Soliris Infusion
Update posted by Reissite Madrid at 01:33 pmReinnite had his last infusion of Soliris today as part of his transplant treatment. This is the drug that PNH patients take. We are grateful that he was granted compassionate use of this drug. Thank you Dr. Weitz of USC and the people of Alexion! :)
A Very Merry Christmas!
Update posted by Reissite Madrid at 02:09 amReinnite is back home and celebrating Christmas with his wife Mairin! But family and friends can’t visit as bone marrow transplants require a 100 day isolation. Please continue to pour your love and support to my twin brother. Merry Christmas to everyone! :) Cake courtesy of Mamu. :)
30 Days since Rebirth
Update posted by Reissite Madrid at 03:26 pm30 days has passed when the transplant was done. Reinnite is at home. :) Limited visitors still. Thank you once again!
No more fever!
Update posted by Reissite Madrid at 03:19 amDoctor has given discharge orders. :) Thank you!
Infection identified. Home a day away!
Update posted by Reissite Madrid at 03:45 amDoctors have determined Galactomannan as the source of infection. Treatment will be another two to three weeks. But Reinnite may go home tom! Yahoo! Thanks everyone!
Scheduled Bronchoscopy for Reinnite
Update posted by Reissite Madrid at 07:18 amReinnite will be undergoing bronchoscopy to determine source of infection. He will be sedated. Procedure will take about an hour. Please pray for a good outcome. Thank you!
Prayer for Reinnite Madrid
Update posted by Reissite Madrid at 05:23 pmReinnite and his wife, Mairin, are devotees of Padre Pio. Please pray for his healing in mind. :)https://padrepiodevotions.org/stay-with-me-lord/?fbclid=IwAR2pnuPi-Uad_ktZKnvfIVaxNay93QlKYJuHpgVU5SNWUJ8AHcVHycgNMOU
Donors & Comments
- Reissite Madrid
- Posted On Jan 20, 2020
P10000 from Melani
- Reissite Madrid
- Posted On Jan 10, 2020
P1010 from Marie Joy R
- Reissite Madrid
- Posted On Jan 08, 2020
P2000 from Ricky Lacson
- Reissite Madrid
- Posted On Jan 06, 2020
Php2k from Ana Cruz-Romero
- Anonymous
- Donated on Jan 04, 2020
- Reissite Madrid
- Posted On Jan 02, 2020
Php10000 from Aboitiz Mentor
- Reissite Madrid
- Posted On Jan 01, 2020
$500USD from LA (Masanque family)
- Reissite Madrid
- Posted On Dec 27, 2019
$500USD from NJ (Tita Cherry, Tita Sonya, Tita Liza)
- Reissite Madrid
- Posted On Dec 26, 2019
Php30000 from Tulabut family
- Anonymous
- Donated on Dec 24, 2019
Praying for better health. Hang in there!
P10000 from Melani