Miggy’s battle against Severe Combined Immunodeficiency Disorder(bubble boy sydrome)
Fundraising campaign by
Ma Edenel Buenconsejo
-
US$261.00raised of $6,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Hello! My name is Vincent Miguel Soria, just call me "Miggy",as my mommy and daddy call me. I am currently admitted in the pediatric intensive care unit here in Philippines Children Medical Center due to Severe Combined Immunodeficiency Disorder(bubble boy syndrome),a very rare genetic disorder where I have little/almost no antibodies to fight any infections that's why Im very prone to infections. In fact, my lungs doesn't function properly due to recurrent pneumonias that's why I needed a mechanical ventilator in order for me to breath.A simple cough or cold could be deadly to me so they keep me isolated. I am given lots of antibiotics such as merophenem, vancomycin, cefexime, omeprazole and lots more.I'm also receiving an IvIg therapy every two weeks costing around 30k to boost my immune system and a bone marrow transplant/gene therapy would also be possible for me to survive with this kind of disorder.The doctors also put a chest tube drainage at my right lungs because they found out that I develop pneumothorax but I'm fighting because I love mommy and daddy and they can't afford losing another son because my two brothers are with Jesus now due to same condition. So please, help my mommy and daddy because I don't want seeing them worried.I need your prayers and any amount will be much appreciated.Thank you so much! God bless you all!
Contact numbers: 09491031081/09120453332
You can also donate money through paypal.
You can also send money through remittance center: Palawan/LBC/Cebuana/MLhuiller Name: Ma.Edenel Buenconsejo Address: Quezon avenue, Quezon City Contact #: 09491031081
If convenient please use bank transfer since the website charges 4% for every transaction.
Here is the bank account of my auntie: Name: Marianne Buenconsejo Account #: 0137 2314 84 Bank: Landbank(savings)
Bank name: BDO(savings) Account name: Michael Soria Account #: 005150274705
Organizer
- Ma Edenel Buenconsejo
- Tabaco, PH
Donors
- Wesley Rea Jr
- Donated on Jan 15, 2019
- Babylen Villar-Belleza
- Donated on Nov 21, 2018
Praying that God grant you a chance at life little Miggy....Keep fighting!!! My heart aches for you but hopefully things get better and you recover from this illness soon....Keep praying Mum and Dad....God does wonders and he is Almighty...he can make Miggy get better...just hang in there and offer everything to God....
I can go home already!
Update posted by Ma Edenel Buenconsejo at 03:14 pmhello everyone! I will be needing a mechanical ventilator,suction machine and a pulse oximeter. If you have old or used one, you can donate it to me,I'll be forever grateful with your kindness. Thank you. God bless you all.
😇😇
Update posted by Ma Edenel Buenconsejo at 06:20 amHello. I will be needing a mechanical ventilator,please help me provide one.
Me, needing a mechanical ventilator
Update posted by Ma Edenel Buenconsejo at 02:05 pmhello everyone!i can go home already but I'll be needing a mechanical ventilator. Please help me buy one.
Playtime
Update posted by Ma Edenel Buenconsejo at 01:56 amThankz to my doctors, for now I can raise my feet and play with mommy, daddy and the nurses,though i have restraints I can still move my hands freely.
My tracheostomy
Update posted by Ma Edenel Buenconsejo at 10:37 amHello everyone,due to prolong intubation the doctors decided to perform tracheostomy on me where an incision is made in the upper aspect of my neck.They said I'm better with this because prolong intubation may cause infections and might harm some parts of my trachea.
Donors & Comments
- Hanna Dworaczyk
- Posted On Jan 26, 2019
Sorry for chrashing, but i really need help. Im a single mom and i cant afford to pay rent with 2 jobs and 2 kids. My husband died in a car accident and im really deperate to get the rent this month. Please help a mom in need. Thank you so much.
- Wesley Rea Jr
- Donated on Jan 15, 2019
- Babylen Villar-Belleza
- Donated on Nov 21, 2018
Praying that God grant you a chance at life little Miggy....Keep fighting!!! My heart aches for you but hopefully things get better and you recover from this illness soon....Keep praying Mum and Dad....God does wonders and he is Almighty...he can make Miggy get better...just hang in there and offer everything to God....
- Anonymous
- Donated on Nov 19, 2018
Hi Edenel and Michael..Be strong, my family will pray for the quick recovery of your baby..God bless and hope this small amount can help.
- Zian Louis
- Donated on Nov 19, 2018
- Ma Edenel Buenconsejo
- Posted On Nov 16, 2018
Thank you so much mam Gelene Llabres.It’s very difficult seeing my son suffering but I know God is with me and He will never leave us with this battle.
- Gelene Llabres
- Donated on Nov 16, 2018
Dear Mr and Mrs Buenconsejo, I can never imagine how difficult it is for you to see your beloved son go through this. It pains me just to read about his condition. My husband and I pray that you will have all the strength and faith in God as you battle this illness together with your son. May Miggy be healed, in Jesus' name.
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Sorry for chrashing, but i really need help. Im a single mom and i cant afford to pay rent with 2 jobs and 2 kids. My husband died in a car accident and im really deperate to get the rent this month. Please help a mom in need. Thank you so much.