Losing Dad to CJD😥 What is CJD??
Fundraising campaign by
Melissa Domeier
-
US$371.00raised of $8,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Dear Friends,
As you might know, this family will soon lose their best friend & father, Phil. He has the fatal Creutzfeldt-Jakob disease (CJD). 1 out of 1 million people catch this rare disease. There is no cure.
Phil's shows to be a inherited disorder, so Phil's kids will be tested, as well. Doctors say he has a few months left, to spend with his family & friends.
Beginning November 2017, Phil has definite memory loss, difficulty keeping balance and walking. During December, he was walking down the driveway, shortly afterwards, he's in his new wheelchair.
As this disease rapidly destroys the brain, victims lose muscle control, the ability to talk, swallow, and eventually death.
Doctors feel Phil has a few months left, to spend with his family & friends.
Phil's wife, drives bus for the local schools, watching over the children in the community. Phil requires round-the-clock aid and supervision, so mom will have to take unpaid days off from work. This loss of income, coupled with his care, is why my daughter & I, created this fundraiser. We hope to raise funds for Phil's medical bills, house expenses, and the costs of what's yet to come.
Phil's wife is humble, and doesn't want to ask anyone for help. She is caring, feeds the neighborhood when cooking her delicious meals, and share smiles with everyone they meet. They are a beautiful family, and they have been in ours lives for 25 years. I don't have much to give, but the little bit I have, along with a small donation from you, will help ease this pain!
Any amount, big or small, will be so appreciated.
Everyday is different for my friends. This illness doesn't discriminate. The whole family and their friends, feel pain and suffering. It's pretty much unbelievable!
Thanks so much for taking the time to learn about CJD, and read my story. God Bless you!
With love and gratitude, Melissa, Mandie, & Brandon
Prayers are needed & Cards & checks are welcomed.
Send to: Fight CJD Phil, PO Box 7 Fruitport, MI 49415
Donate thru Paypal:
All donations will be updated towards the goal, and receipts will be sent.
Please share any information on CJD experiences, state or federal aid programs, or anything that could help this family.
https://youtu.be/WAe2a9x-4YQ
Learn about CJD below:
https://youtu.be/lS9jKVM7ZXo
https://g.co/kgs/tZQuuj
https://ssl.adam.com/content.aspx?productId=117&pi...
Organizer
- Melissa Domeier
- Campaign Owner
Donors
- Ashley Mace
- Donated on Apr 23, 2018
- Maryclaire Grigson
- Donated on Apr 22, 2018
- Kendra Kathe
- Donated on Apr 21, 2018
So sorry for your loss Ali. Thoughts and prayers to your family.
Surpassing doctors estimate!
Update posted by Melissa Domeier at 10:40 pmQuite a bit has happened since our last update in January.It's seems like such a short time, but for Phil and those who have been nearby, taking care him, it's been a long tedious road.Anyone who knows Phil, can tell you, he can put up a good fight. Phil fought. . . . .
Celebrating a $2k milestone today!
Update posted by Melissa Domeier at 03:54 amhttps://www.facebook.com/donate/1197079217093359/1218393648295249/
Enjoy our Spaghetti Dinner Benefit
Update posted by Melissa Domeier at 12:40 amPlease, Come on out and support our friends! You will enjoy a delicious dinner, win great prizes, and spread the love!
Donors & Comments
- Ashley Mace
- Donated on Apr 23, 2018
- Maryclaire Grigson
- Donated on Apr 22, 2018
- Kendra Kathe
- Donated on Apr 21, 2018
So sorry for your loss Ali. Thoughts and prayers to your family.
- Kim Spohn
- Donated on Apr 21, 2018
- Anonymous
- Donated on Apr 14, 2018
- Anthony charles
- Posted On Mar 30, 2018
Hello Melissa I’d like to help you... Email me [email protected] with the update about everything so we can discuss further on how to help you...
- Anonymous
- Donated on Mar 19, 2018
- Kevin
- Donated on Feb 24, 2018
- Carlyce John
- Donated on Jan 30, 2018
Deanna, you and Phil are truly the best neighbors anyone could hope for. Thank you both for always looking out for us since day 1. We love you guys. Love - Fernando, Carlyce, Jayden, and Solana
- Guest
- Donated on Jan 26, 2018