jehaan,s and families daily needs medical expences etc…

hi im a unemployed ( disable ) mother of 3 young girls...my eldest is 8yrs and second eldest is 5 my baby is 3 years old born with a rare disease called sturge weber syndrome ....she was also diagnosed with klippel traunay syndrome , rickets disease and osteospetrosis ...she have an enlarge liver and spleen ....she have severe developmental delays she can not speak nor crawl or walk ..she have glaucoma in both eyes which surgery will yet to be discussed for a date....my main concern is that due to lack of marrow calcuim magnesuim and potassuim and loss of platelets and her hb that drops from time to time and the constant seizures uncontrolleble seizures .i am appealling to anyone and everyone i cant do this on my own please i really need some help not just for the operation but for her and our everyday needs she is on four anti seizure medication the lamotrogine,clobazam,carbemazerpine and phenobarbitone...and on tons of calcuim a day and her other supplements...i wish i could run to my family for help but i cant....my grant is our only income and that barely lasts for 2weeks if all rent and debts are paid.....please if anyone can help us help her i cannot loose my girls or my baby please help us thank you so very much..we are squating in a small shack that has drainage and leakage problems and it is a big problem not just for my girls but healthwise it efffects jehaan more worsely..yes we have been evicted its just with my low income of grant i cant afford to get a place suitable for the children and that wont take them away from school or hospital...when there are no traveling fees i walk at least those 3 and ahalf hours to and from hospital....this illness has affected her brain and her whole body is covereved with the port wine stain birthmark and mangolian spots..please can anyone help me help us thank u so much